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Bibliographic Details
Main Authors:	Catalano, Guido, Morelli, Federica, Grumi, Serena, Paini, Daria, Decortes, Francesco, Scognamillo, Ilaria, Reffo, Maria Eleonora, Zumiani, Roberta, Strazzer, Sandra, Cocchi, Elena, Provenzi, Livio, Signorini, Sabrina
Format:	Recurso digital
Language:
Published:	Zenodo 2025
Subjects:	visual impairment children adolescents patient-reported outcome measure adaptive abilities rehabilitation
Online Access:	https://doi.org/10.5281/zenodo.17404309
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This database includes the raw data linked with the paper “Functional vision promotes quality of life and socio-emotional functioning in visually impaired children and adolescents” under review on PLOS One. This quantitative study is part of the VIDA project that created and validated the VIDA scale: a PROM questionnaire to assess the autonomy level of children with visual impairment (VI). Building on this tool, the present study aimed to: i) describe the socio-emotional and behavioural profile of a large cohort of children with congenital or early-acquired visual impairment (VI); and ii) inquire whether aspect of visual function (namely, visual acuity, which measures the degree of visual impairment) and/or functional vision (namely, functional independence) are associated with better perceived quality of life and socio-emotional and behavioural outcomes. Procedures. 91 caregivers of as many visually impaired children (age range 6-18, mean age 11.05 years, 47 females) - split into two age groups: 6-10 years; 11-18 years - were enrolled in an on-line survey including three validated questionnaires to assess children’: a)  autonomies, via the Patient Reported Outcome Measure (PROM) VIDA tool; b) socio-emotional and behavioural problems; c) quality of life (QoL). Clinical and socio-demographic information were also collected. Analytical plan. Comparisons between the two age groups were performed using the Wilcoxon-Mann-Whitney test for ordinal variables or the t-test for continuous ones. For continuous variables, data normality was assessed using the Shapiro–Wilk test. The equality of variances was evaluated using Levene’s test, and when this assumption was violated, the Welch correction was applied. To test the influence of visual function (i.e., visual acuity), a set of analyses of variance (ANOVAs) were performed to test differences between sub-groups with different visual impairment (i.e., blind, severe or moderate/mild low vision) on quality of life and emotional-behavioural issues variables. Pearson’s bivariate correlations coefficients were used to test the association between functional vision (i.e.,VIDA scale score), quality of life, and emotional-behavioural issues. Findings in brief. Both age groups showed medium-high average level of autonomy in every investigated area as well as appropriate socio-emotional, behavioral, and QoL scores. Interestingly, adolescents showed lower scores in autonomies compared to the younger age group overall. Autonomy score significantly associated with better QoL and less socio-emotional and behavioural problems, both internalizing and externalizing.  Our results highlight the importance of assessing autonomy in the context of paediatric VI rehabilitation as they largely associate and potentially impact on young patients’ psychological well-being.

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