Foundational guidelines for enhancing neurotechnology research and development through end-user involvement

Fuente: arXiv
Guardado en:
Detalles Bibliográficos
Autores principales: Güemes, Amparo, Costa, Tiago da Silva, Makin, Tamar
Formato: Preprint
Publicado: 2024
Materias:
Acceso en línea:
Etiquetas: Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
_version_ 1866910599557939200
author Güemes, Amparo
Costa, Tiago da Silva
Makin, Tamar
author_facet Güemes, Amparo
Costa, Tiago da Silva
Makin, Tamar
contents Neurotechnologies are increasingly becoming integrated with our everyday lives, our bodies and our mental states. As the popularity and impact of neurotechnology grows, so does our responsibility to ensure we understand its particular implications on its end users, as well as broader ethical and societal implications. Enabling end-users and stakeholders to participate in the development of neurotechnology, from its earliest stages of conception, will help us better navigate our design around these considerations and deliver more impactful technologies. There are many terms and frameworks to articulate the concept of involving end users in the technology development lifecycle, for example: 'Public and Patient Involvement and Engagement' (PPIE), 'lived experience' and 'co-design'. Here we utilise the PPIE framework to develop clear guidelines for implementing a robust involvement process of current and future end-users in neurotechnology. We present best practice guidance for researchers and engineers who are interested in developing and conducting a PPI strategy for their neurotechnology. We provide advice from various online sources to orient individual teams (and funders) to carve up their own approach to meaningful involvement. After an introduction that coveys the tangible and conceptual benefits of user involvement, we guide the reader to develop a general strategy towards setting up their own process. We then help the reader map out their relevant stakeholders and provide advice on how to consider user diversity and representation. We also provide advice on how to quantify the outcomes of the engagement, as well as a check-list to ensure transparency and accountability at various stages. The aim is the establishment of gold-standard methodologies for ensuring that patient and public insights are at the forefront of our scientific inquiry and product development.
format Preprint
id arxiv_https___arxiv_org_abs_2404_00047
institution arXiv
publishDate 2024
record_format arxiv
spellingShingle Foundational guidelines for enhancing neurotechnology research and development through end-user involvement
Güemes, Amparo
Costa, Tiago da Silva
Makin, Tamar
Human-Computer Interaction
Computers and Society
Neurotechnologies are increasingly becoming integrated with our everyday lives, our bodies and our mental states. As the popularity and impact of neurotechnology grows, so does our responsibility to ensure we understand its particular implications on its end users, as well as broader ethical and societal implications. Enabling end-users and stakeholders to participate in the development of neurotechnology, from its earliest stages of conception, will help us better navigate our design around these considerations and deliver more impactful technologies. There are many terms and frameworks to articulate the concept of involving end users in the technology development lifecycle, for example: 'Public and Patient Involvement and Engagement' (PPIE), 'lived experience' and 'co-design'. Here we utilise the PPIE framework to develop clear guidelines for implementing a robust involvement process of current and future end-users in neurotechnology. We present best practice guidance for researchers and engineers who are interested in developing and conducting a PPI strategy for their neurotechnology. We provide advice from various online sources to orient individual teams (and funders) to carve up their own approach to meaningful involvement. After an introduction that coveys the tangible and conceptual benefits of user involvement, we guide the reader to develop a general strategy towards setting up their own process. We then help the reader map out their relevant stakeholders and provide advice on how to consider user diversity and representation. We also provide advice on how to quantify the outcomes of the engagement, as well as a check-list to ensure transparency and accountability at various stages. The aim is the establishment of gold-standard methodologies for ensuring that patient and public insights are at the forefront of our scientific inquiry and product development.
title Foundational guidelines for enhancing neurotechnology research and development through end-user involvement
topic Human-Computer Interaction
Computers and Society
url https://arxiv.org/abs/2404.00047