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Hauptverfasser: Dorantes-Gilardi, Rodrigo, Ivey, Kerry, Costa, Lauren, Matty, Rachael, Cho, Kelly, Gaziano, John Michael, Barabási, Albert-László
Format: Preprint
Veröffentlicht: 2024
Schlagworte:
Online-Zugang:https://arxiv.org/abs/2407.01248
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author Dorantes-Gilardi, Rodrigo
Ivey, Kerry
Costa, Lauren
Matty, Rachael
Cho, Kelly
Gaziano, John Michael
Barabási, Albert-László
author_facet Dorantes-Gilardi, Rodrigo
Ivey, Kerry
Costa, Lauren
Matty, Rachael
Cho, Kelly
Gaziano, John Michael
Barabási, Albert-László
contents Biobanks advance biomedical and clinical research by collecting and offering data and biological samples for numerous studies. However, the impact of these repositories varies greatly due to differences in their purpose, scope, governance, and data collected. Here, we computationally identified 2,663 biobanks and their textual mentions in 228,761 scientific articles, 16,210 grants, 15,469 patents, 1,769 clinical trials, and 9,468 public policy documents, helping characterize the academic communities that utilize and support them. We found a strong concentration of biobank-related research on a few diseases, where 20\% of publications focus on obesity, Alzheimer's disease, breast cancer, and diabetes. Moreover, collaboration, rather than citation count, shapes the community's recognition of a biobank. We show that, on average, 41.1\% of articles miss to reference any of the biobank's reference papers and 59.6\% include a biobank member as a co-author. Using a generalized linear model, we identified the key factors that contribute to the impact of a biobank, finding that an impactful biobank tends to be more open to external researchers, and that quality data -- especially linked medical records -- as opposed to large data, correlates with a higher impact in science, innovation, and disease. The collected data and findings are accessible through an open-access web application intended to inform strategies to expand access and maximize the value of these valuable resources.
format Preprint
id arxiv_https___arxiv_org_abs_2407_01248
institution arXiv
publishDate 2024
record_format arxiv
spellingShingle Quantifying the Impact of Biobanks and Cohort Studies
Dorantes-Gilardi, Rodrigo
Ivey, Kerry
Costa, Lauren
Matty, Rachael
Cho, Kelly
Gaziano, John Michael
Barabási, Albert-László
Quantitative Methods
Biobanks advance biomedical and clinical research by collecting and offering data and biological samples for numerous studies. However, the impact of these repositories varies greatly due to differences in their purpose, scope, governance, and data collected. Here, we computationally identified 2,663 biobanks and their textual mentions in 228,761 scientific articles, 16,210 grants, 15,469 patents, 1,769 clinical trials, and 9,468 public policy documents, helping characterize the academic communities that utilize and support them. We found a strong concentration of biobank-related research on a few diseases, where 20\% of publications focus on obesity, Alzheimer's disease, breast cancer, and diabetes. Moreover, collaboration, rather than citation count, shapes the community's recognition of a biobank. We show that, on average, 41.1\% of articles miss to reference any of the biobank's reference papers and 59.6\% include a biobank member as a co-author. Using a generalized linear model, we identified the key factors that contribute to the impact of a biobank, finding that an impactful biobank tends to be more open to external researchers, and that quality data -- especially linked medical records -- as opposed to large data, correlates with a higher impact in science, innovation, and disease. The collected data and findings are accessible through an open-access web application intended to inform strategies to expand access and maximize the value of these valuable resources.
title Quantifying the Impact of Biobanks and Cohort Studies
topic Quantitative Methods
url https://arxiv.org/abs/2407.01248