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Main Authors: Dahiya, Liza, Bagga, Rachit
Format: Preprint
Published: 2024
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Online Access:https://arxiv.org/abs/2412.01692
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author Dahiya, Liza
Bagga, Rachit
author_facet Dahiya, Liza
Bagga, Rachit
contents Social media platforms, particularly Reddit's r/Epilepsy community, offer a unique perspective into the experiences of individuals with epilepsy (PWE) and their caregivers. This study analyzes 57k posts and 533k comments to explore key themes across demographics such as age, gender, and relationships. Our findings highlight significant discussions on epilepsy-related challenges, including depression (with 39.75\% of posts indicating severe symptoms), driving restrictions, workplace concerns, and pregnancy-related issues in women with epilepsy. We introduce a novel engagement metric, F(P), which incorporates post length, sentiment scores, and readability to quantify community interaction. This analysis underscores the importance of integrated care addressing both neurological and mental health challenges faced by PWE. The insights from this study inform strategies for targeted support and awareness interventions.
format Preprint
id arxiv_https___arxiv_org_abs_2412_01692
institution arXiv
publishDate 2024
record_format arxiv
spellingShingle Digital Epidemiology: Leveraging Social Media for Insight into Epilepsy and Mental Health
Dahiya, Liza
Bagga, Rachit
Artificial Intelligence
Social media platforms, particularly Reddit's r/Epilepsy community, offer a unique perspective into the experiences of individuals with epilepsy (PWE) and their caregivers. This study analyzes 57k posts and 533k comments to explore key themes across demographics such as age, gender, and relationships. Our findings highlight significant discussions on epilepsy-related challenges, including depression (with 39.75\% of posts indicating severe symptoms), driving restrictions, workplace concerns, and pregnancy-related issues in women with epilepsy. We introduce a novel engagement metric, F(P), which incorporates post length, sentiment scores, and readability to quantify community interaction. This analysis underscores the importance of integrated care addressing both neurological and mental health challenges faced by PWE. The insights from this study inform strategies for targeted support and awareness interventions.
title Digital Epidemiology: Leveraging Social Media for Insight into Epilepsy and Mental Health
topic Artificial Intelligence
url https://arxiv.org/abs/2412.01692