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| Autori principali: | , , , , , , , , |
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| Natura: | Preprint |
| Pubblicazione: |
2024
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| Soggetti: | |
| Accesso online: | https://arxiv.org/abs/2412.04248 |
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| _version_ | 1866910728746696704 |
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| author | Weber, SC Pallas, J Olson, G Love, D Malunjkar, S Boosi, S Loh, E Datta, S Ferris, TA |
| author_facet | Weber, SC Pallas, J Olson, G Love, D Malunjkar, S Boosi, S Loh, E Datta, S Ferris, TA |
| contents | STARR (STAnford Research Repository) is a clinical research support ecosystem that supports basic science research, population health research and translational research at Stanford University. STARR consists of raw and analysis ready multi-modal data, and tools for cohort analysis and self service data access. STARR data is accessible on secure shared computing systems for ad hoc analysis. Also present is a suite of services on top of STARR, that allow researchers access to complex purpose built data cuts, common data models and software solutions. This manuscript is a research resource description and describes the evolution of STARR Tools that are used to offer self-service access to detailed clinical data for research purposes to researchers at Stanford Medicine, along with a framework used to ensure that data acquired via the self-service tools is handled in compliance with all applicable regulations and rules. |
| format | Preprint |
| id |
arxiv_https___arxiv_org_abs_2412_04248 |
| institution | arXiv |
| publishDate | 2024 |
| record_format | arxiv |
| spellingShingle | Compliant Self Service Access to Secondary Use Clinical Data at Stanford Medicine Weber, SC Pallas, J Olson, G Love, D Malunjkar, S Boosi, S Loh, E Datta, S Ferris, TA Databases Software Engineering STARR (STAnford Research Repository) is a clinical research support ecosystem that supports basic science research, population health research and translational research at Stanford University. STARR consists of raw and analysis ready multi-modal data, and tools for cohort analysis and self service data access. STARR data is accessible on secure shared computing systems for ad hoc analysis. Also present is a suite of services on top of STARR, that allow researchers access to complex purpose built data cuts, common data models and software solutions. This manuscript is a research resource description and describes the evolution of STARR Tools that are used to offer self-service access to detailed clinical data for research purposes to researchers at Stanford Medicine, along with a framework used to ensure that data acquired via the self-service tools is handled in compliance with all applicable regulations and rules. |
| title | Compliant Self Service Access to Secondary Use Clinical Data at Stanford Medicine |
| topic | Databases Software Engineering |
| url | https://arxiv.org/abs/2412.04248 |