From Patient Burdens to User Agency: Designing for Real-Time Protection Support in Online Health Consultations

Fuente: arXiv
Saved in:
Bibliographic Details
Main Authors: Zhang, Shuning, Ma, Ying, Hu, Yongquan `Owen', Dang, Ting, Jia, Hong, Yi, Xin, Li, Hewu
Format: Preprint
Published: 2025
Subjects:
Online Access:
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1866916875054612480
author Zhang, Shuning
Ma, Ying
Hu, Yongquan `Owen'
Dang, Ting
Jia, Hong
Yi, Xin
Li, Hewu
author_facet Zhang, Shuning
Ma, Ying
Hu, Yongquan `Owen'
Dang, Ting
Jia, Hong
Yi, Xin
Li, Hewu
contents Online medical consultation platforms, while convenient, are undermined by significant privacy risks that erode user trust. We first conducted in-depth semi-structured interviews with 12 users to understand their perceptions of security and privacy landscapes on online medical consultation platforms, as well as their practices, challenges and expectation. Our analysis reveals a critical disconnect between users' desires for anonymity and control, and platform realities that offload the responsibility of ``privacy labor''. To bridge this gap, we present SafeShare, an interaction technique that leverages localized LLM to redact consultations in real-time. SafeShare balances utility and privacy through selectively anonymize private information. A technical evaluation of SafeShare's core PII detection module on 3 dataset demonstrates high efficacy, achieving 89.64\% accuracy with Qwen3-4B on IMCS21 dataset.
format Preprint
id arxiv_https___arxiv_org_abs_2508_00328
institution arXiv
publishDate 2025
record_format arxiv
spellingShingle From Patient Burdens to User Agency: Designing for Real-Time Protection Support in Online Health Consultations
Zhang, Shuning
Ma, Ying
Hu, Yongquan `Owen'
Dang, Ting
Jia, Hong
Yi, Xin
Li, Hewu
Human-Computer Interaction
Online medical consultation platforms, while convenient, are undermined by significant privacy risks that erode user trust. We first conducted in-depth semi-structured interviews with 12 users to understand their perceptions of security and privacy landscapes on online medical consultation platforms, as well as their practices, challenges and expectation. Our analysis reveals a critical disconnect between users' desires for anonymity and control, and platform realities that offload the responsibility of ``privacy labor''. To bridge this gap, we present SafeShare, an interaction technique that leverages localized LLM to redact consultations in real-time. SafeShare balances utility and privacy through selectively anonymize private information. A technical evaluation of SafeShare's core PII detection module on 3 dataset demonstrates high efficacy, achieving 89.64\% accuracy with Qwen3-4B on IMCS21 dataset.
title From Patient Burdens to User Agency: Designing for Real-Time Protection Support in Online Health Consultations
topic Human-Computer Interaction
url https://arxiv.org/abs/2508.00328