Towards Enhancing Data Equity in Public Health Data Science

Fuente: arXiv
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Autori principali: Wang, Yiran, Boyd, Alicia E., Rountree, Lillian, Ren, Yi, Nyhan, Kate, Nagar, Ruchit, Higginbottom, Jackson, Ranney, Megan L., Parikh, Harsh, Mukherjee, Bhramar
Natura: Preprint
Pubblicazione: 2025
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author Wang, Yiran
Boyd, Alicia E.
Rountree, Lillian
Ren, Yi
Nyhan, Kate
Nagar, Ruchit
Higginbottom, Jackson
Ranney, Megan L.
Parikh, Harsh
Mukherjee, Bhramar
author_facet Wang, Yiran
Boyd, Alicia E.
Rountree, Lillian
Ren, Yi
Nyhan, Kate
Nagar, Ruchit
Higginbottom, Jackson
Ranney, Megan L.
Parikh, Harsh
Mukherjee, Bhramar
contents Data-driven decisions shape public health policies and practice, yet persistent disparities in data representation skew insights and undermine interventions. To address this, we advance a structured roadmap that integrates public health data science with computer science and is grounded in reflexivity. We adopt data equity as a guiding concept: ensuring the fair and inclusive representation, collection, and use of data to prevent the introduction or exacerbation of systemic biases that could lead to invalid downstream inference and decisions. To underscore urgency, we present three public health cases where non-representative datasets and skewed knowledge impede decisions across diverse subgroups. These challenges echo themes in two literatures: public health highlights gaps in high-quality data for specific populations, while computer science and statistics contribute criteria and metrics for diagnosing bias in data and models. Building on these foundations, we propose a working definition of public health data equity and a structured self-audit framework. Our framework integrates core computational principles (fairness, accountability, transparency, ethics, privacy, confidentiality) with key public health considerations (selection bias, representativeness, generalizability, causality, information bias) to guide equitable practice across the data life cycle, from study design and data collection to measurement, analysis, interpretation, and translation. Embedding data equity in routine practice offers a practical path for ensuring that data-driven policies, artificial intelligence, and emerging technologies improve health outcomes for all. Finally, we emphasize the critical understanding that, although data equity is an essential first step, it does not inherently guarantee information, learning, or decision equity.
format Preprint
id arxiv_https___arxiv_org_abs_2508_20301
institution arXiv
publishDate 2025
record_format arxiv
spellingShingle Towards Enhancing Data Equity in Public Health Data Science
Wang, Yiran
Boyd, Alicia E.
Rountree, Lillian
Ren, Yi
Nyhan, Kate
Nagar, Ruchit
Higginbottom, Jackson
Ranney, Megan L.
Parikh, Harsh
Mukherjee, Bhramar
Applications
Data-driven decisions shape public health policies and practice, yet persistent disparities in data representation skew insights and undermine interventions. To address this, we advance a structured roadmap that integrates public health data science with computer science and is grounded in reflexivity. We adopt data equity as a guiding concept: ensuring the fair and inclusive representation, collection, and use of data to prevent the introduction or exacerbation of systemic biases that could lead to invalid downstream inference and decisions. To underscore urgency, we present three public health cases where non-representative datasets and skewed knowledge impede decisions across diverse subgroups. These challenges echo themes in two literatures: public health highlights gaps in high-quality data for specific populations, while computer science and statistics contribute criteria and metrics for diagnosing bias in data and models. Building on these foundations, we propose a working definition of public health data equity and a structured self-audit framework. Our framework integrates core computational principles (fairness, accountability, transparency, ethics, privacy, confidentiality) with key public health considerations (selection bias, representativeness, generalizability, causality, information bias) to guide equitable practice across the data life cycle, from study design and data collection to measurement, analysis, interpretation, and translation. Embedding data equity in routine practice offers a practical path for ensuring that data-driven policies, artificial intelligence, and emerging technologies improve health outcomes for all. Finally, we emphasize the critical understanding that, although data equity is an essential first step, it does not inherently guarantee information, learning, or decision equity.
title Towards Enhancing Data Equity in Public Health Data Science
topic Applications
url https://arxiv.org/abs/2508.20301