Co-designing for the Triad: Design Considerations for Collaborative Decision-Making Technologies in Pediatric Chronic Care
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arXiv
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| Main Authors: | , , , , , , , , , |
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| Format: | Preprint |
| Published: |
2026
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| _version_ | 1866910073949782016 |
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| author | Chung, Ray-Yuan Snyder, Jaime Xu, Zixuan Yoo, Daeun Ortega, Athena C. Pratt, Wanda Wightman, Aaron Hutson, Ryan Pruette, Cozumel Pollack, Ari |
| author_facet | Chung, Ray-Yuan Snyder, Jaime Xu, Zixuan Yoo, Daeun Ortega, Athena C. Pratt, Wanda Wightman, Aaron Hutson, Ryan Pruette, Cozumel Pollack, Ari |
| contents | In pediatric chronic care, the triadic relationship among patients, caregivers, and healthcare providers introduces unique challenges for youth in managing their conditions. Diverging values, roles, and asymmetrical situational awareness across decision-maker groups often hinder collaboration and affect health outcomes, highlighting the need to support collaborative decision-making. We conducted co-design workshops with 6 youth with chronic kidney disease, 6 caregivers, and 7 healthcare providers to explore how digital technologies can be designed to support collaborative decision-making. Findings identify barriers across all levels of situational awareness, ranging from individual cognitive and emotional constraints, misaligned mental models, to relational conflicts regarding care goals. We propose design implications that support continuous decision-making practice, align mental models, balance caregiver support and youth autonomy development, and surface potential care challenges. This work advances the design of collaborative decision-making technologies that promote shared understanding and empower families in pediatric chronic care. |
| format | Preprint |
| id |
arxiv_https___arxiv_org_abs_2603_24993 |
| institution | arXiv |
| publishDate | 2026 |
| record_format | arxiv |
| spellingShingle | Co-designing for the Triad: Design Considerations for Collaborative Decision-Making Technologies in Pediatric Chronic Care Chung, Ray-Yuan Snyder, Jaime Xu, Zixuan Yoo, Daeun Ortega, Athena C. Pratt, Wanda Wightman, Aaron Hutson, Ryan Pruette, Cozumel Pollack, Ari Human-Computer Interaction In pediatric chronic care, the triadic relationship among patients, caregivers, and healthcare providers introduces unique challenges for youth in managing their conditions. Diverging values, roles, and asymmetrical situational awareness across decision-maker groups often hinder collaboration and affect health outcomes, highlighting the need to support collaborative decision-making. We conducted co-design workshops with 6 youth with chronic kidney disease, 6 caregivers, and 7 healthcare providers to explore how digital technologies can be designed to support collaborative decision-making. Findings identify barriers across all levels of situational awareness, ranging from individual cognitive and emotional constraints, misaligned mental models, to relational conflicts regarding care goals. We propose design implications that support continuous decision-making practice, align mental models, balance caregiver support and youth autonomy development, and surface potential care challenges. This work advances the design of collaborative decision-making technologies that promote shared understanding and empower families in pediatric chronic care. |
| title | Co-designing for the Triad: Design Considerations for Collaborative Decision-Making Technologies in Pediatric Chronic Care |
| topic | Human-Computer Interaction |
| url | https://arxiv.org/abs/2603.24993 |