When Sounds Hurt and Voices Aren't Heard: An Experience Report on Misophonia, Sensory Trauma, and Trauma-Informed Design
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arXiv
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| Format: | Preprint |
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2026
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| _version_ | 1866914559346868224 |
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| author | Ammari, Tawfiq |
| author_facet | Ammari, Tawfiq |
| contents | This experience report reflects on researching misophonia as someone who lives with it. Misophonia is an aversive response to everyday sounds (chewing, sniffling, pen clicking) and, for many of us, to associated visual cues (misokinesia). It is poorly recognized clinically and socially. People with misophonia are routinely disbelieved, and they live inside platform surfaces (auto-playing audio, algorithmic ASMR, normalized eating on camera) that turn the sensory environment itself into recurring distress. This report is a re-reading of a prior qualitative study of 16 semi-structured interviews with misophones, conducted in dialogue with my lived experience and my role in the soQuiet Misophonia Research Network. I extend the trauma-informed design (TID) conversation in two ways. First, TID must treat embodied, contested conditions as sources of both sensory and epistemic harm: ongoing trauma produced by the audiovisual surface and by repeated dismissal of users' accounts of their bodies. Second, the closed groups and moderated subreddits participants relied on can reproduce that dismissal when a few moderators decide whose experiences count. I close with implications for ASSETS. |
| format | Preprint |
| id |
arxiv_https___arxiv_org_abs_2605_09796 |
| institution | arXiv |
| publishDate | 2026 |
| record_format | arxiv |
| spellingShingle | When Sounds Hurt and Voices Aren't Heard: An Experience Report on Misophonia, Sensory Trauma, and Trauma-Informed Design Ammari, Tawfiq Human-Computer Interaction This experience report reflects on researching misophonia as someone who lives with it. Misophonia is an aversive response to everyday sounds (chewing, sniffling, pen clicking) and, for many of us, to associated visual cues (misokinesia). It is poorly recognized clinically and socially. People with misophonia are routinely disbelieved, and they live inside platform surfaces (auto-playing audio, algorithmic ASMR, normalized eating on camera) that turn the sensory environment itself into recurring distress. This report is a re-reading of a prior qualitative study of 16 semi-structured interviews with misophones, conducted in dialogue with my lived experience and my role in the soQuiet Misophonia Research Network. I extend the trauma-informed design (TID) conversation in two ways. First, TID must treat embodied, contested conditions as sources of both sensory and epistemic harm: ongoing trauma produced by the audiovisual surface and by repeated dismissal of users' accounts of their bodies. Second, the closed groups and moderated subreddits participants relied on can reproduce that dismissal when a few moderators decide whose experiences count. I close with implications for ASSETS. |
| title | When Sounds Hurt and Voices Aren't Heard: An Experience Report on Misophonia, Sensory Trauma, and Trauma-Informed Design |
| topic | Human-Computer Interaction |
| url | https://arxiv.org/abs/2605.09796 |