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Autori principali: Braiden, Hannah-Jane, Bothwell, Janice, Duffy, Joe
Natura: Recurso educativo Open Access
Lingua:en
Pubblicazione: 2010
Soggetti:
Accesso online:https://eric.ed.gov/?id=EJ903662
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author Braiden, Hannah-Jane
Bothwell, Janice
Duffy, Joe
author_facet Braiden, Hannah-Jane
Bothwell, Janice
Duffy, Joe
Braiden, Hannah-Jane
Bothwell, Janice
Duffy, Joe
collection Education Resources Information Center
contents Parents' Experience of the Diagnostic Process for Autistic Spectrum Disorders Braiden, Hannah-Jane Bothwell, Janice Duffy, Joe Autism Foreign Countries Pervasive Developmental Disorders Clinical Diagnosis Disability Identification Parents Interviews Parent Attitudes Health Personnel Parental perceptions of receiving a diagnosis for their child have been widely researched, with results suggesting high levels of dissatisfaction. Such research has focused upon diagnoses such as Down syndrome and cerebral palsy, and has often looked specifically at the disclosure of a diagnosis. There is limited research looking at the process associated with receiving a diagnosis of an autism spectrum disorder (ASD); that is, from sharing initial concerns to receiving support and intervention. This study aimed to document parents' experiences of the diagnostic process for ASD. A sample of participants was selected, according to set criteria, from an Education and Library Board database in Northern Ireland. Eleven parents agreed to be interviewed at home, using a semi-structured interview schedule, on their experiences of ASD diagnostic procedures. Qualitative responses were analysed using thematic analysis. Data were also presented descriptively. Results suggested that the majority of parents had positive comments about the assessment and diagnostic experience. Parents cited several points as contributing to their overall experience with the process. These included having their initial concerns listened to, receiving their child's diagnosis in person, receiving written information and help in applying this information. This report provides a valuable insight into parental experiences of receiving an ASD diagnosis for their child. Key findings highlight the complexity of the diagnostic process for both practitioners and families involved, and therefore may have implications for practice. This is further discussed in the report. (Contains 1 table.)
format Recurso educativo Open Access
id eric_EJ903662
institution ERIC Institute of Education Sciences
language en
publishDate 2010
record_format eric
spellingShingle Parents' Experience of the Diagnostic Process for Autistic Spectrum Disorders
Braiden, Hannah-Jane
Bothwell, Janice
Duffy, Joe
Autism
Foreign Countries
Pervasive Developmental Disorders
Clinical Diagnosis
Disability Identification
Parents
Interviews
Parent Attitudes
Health Personnel
Parents' Experience of the Diagnostic Process for Autistic Spectrum Disorders Braiden, Hannah-Jane Bothwell, Janice Duffy, Joe Autism Foreign Countries Pervasive Developmental Disorders Clinical Diagnosis Disability Identification Parents Interviews Parent Attitudes Health Personnel Parental perceptions of receiving a diagnosis for their child have been widely researched, with results suggesting high levels of dissatisfaction. Such research has focused upon diagnoses such as Down syndrome and cerebral palsy, and has often looked specifically at the disclosure of a diagnosis. There is limited research looking at the process associated with receiving a diagnosis of an autism spectrum disorder (ASD); that is, from sharing initial concerns to receiving support and intervention. This study aimed to document parents' experiences of the diagnostic process for ASD. A sample of participants was selected, according to set criteria, from an Education and Library Board database in Northern Ireland. Eleven parents agreed to be interviewed at home, using a semi-structured interview schedule, on their experiences of ASD diagnostic procedures. Qualitative responses were analysed using thematic analysis. Data were also presented descriptively. Results suggested that the majority of parents had positive comments about the assessment and diagnostic experience. Parents cited several points as contributing to their overall experience with the process. These included having their initial concerns listened to, receiving their child's diagnosis in person, receiving written information and help in applying this information. This report provides a valuable insight into parental experiences of receiving an ASD diagnosis for their child. Key findings highlight the complexity of the diagnostic process for both practitioners and families involved, and therefore may have implications for practice. This is further discussed in the report. (Contains 1 table.)
title Parents' Experience of the Diagnostic Process for Autistic Spectrum Disorders
topic Autism
Foreign Countries
Pervasive Developmental Disorders
Clinical Diagnosis
Disability Identification
Parents
Interviews
Parent Attitudes
Health Personnel
url https://eric.ed.gov/?id=EJ903662