Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

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Autore principale: Joice Soares Campos
Natura: Artículo científico
Lingua:en
Pubblicazione: Universidad de Antioquia 2021
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author Joice Soares Campos
author_facet Joice Soares Campos
contents Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres Medicina aged Caregivers home nursing family health qualitative research Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs. 2021 artículo científico 0120-5307 https://www.redalyc.org/articulo.oa?id=105268050009 https://www.redalyc.org/journal/1052/105268050009/ https://www.redalyc.org/journal/1052/105268050009/html/ https://www.redalyc.org/journal/1052/105268050009/105268050009.epub https://www.redalyc.org/journal/1052/105268050009/movil 10.17533/udea.iee.v39n2e09 en http://www.redalyc.org/revista.oa?id=1052 Investigación y Educación en Enfermería application/pdf Universidad de Antioquia Investigación y Educación en Enfermería (Colombia) Num.2 Vol.39
format Artículo científico
id redalyc_105268050009
institution Redalyc
language en
publishDate 2021
publisher Universidad de Antioquia
spellingShingle Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
Joice Soares Campos
Medicina
aged
Caregivers
home nursing
family health
qualitative research
Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres Medicina aged Caregivers home nursing family health qualitative research Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs. 2021 artículo científico 0120-5307 https://www.redalyc.org/articulo.oa?id=105268050009 https://www.redalyc.org/journal/1052/105268050009/ https://www.redalyc.org/journal/1052/105268050009/html/ https://www.redalyc.org/journal/1052/105268050009/105268050009.epub https://www.redalyc.org/journal/1052/105268050009/movil 10.17533/udea.iee.v39n2e09 en http://www.redalyc.org/revista.oa?id=1052 Investigación y Educación en Enfermería application/pdf Universidad de Antioquia Investigación y Educación en Enfermería (Colombia) Num.2 Vol.39
title Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
topic Medicina
aged
Caregivers
home nursing
family health
qualitative research
url https://www.redalyc.org/articulo.oa?id=105268050009
https://www.redalyc.org/journal/1052/105268050009/
https://www.redalyc.org/journal/1052/105268050009/html/
https://www.redalyc.org/journal/1052/105268050009/105268050009.epub
https://www.redalyc.org/journal/1052/105268050009/movil