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Bibliographic Details
Main Author:	Jorge Henrique Correa dos Santos
Format:	Artículo científico
Language:	pt
Published:	Núcleo de Estudos em Saúde Mental e Psicanálise das Configurações Vinculares 2022
Subjects:	Medicina Pais criança cuidadores relações pai criança hospitalizada
Online Access:	https://www.redalyc.org/articulo.oa?id=139473537006 https://www.redalyc.org/journal/1394/139473537006/ https://www.redalyc.org/journal/1394/139473537006/html/ https://www.redalyc.org/journal/1394/139473537006/139473537006.epub https://www.redalyc.org/journal/1394/139473537006/movil
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A experiência vivenciada pelo cuidador da criança/adolescente que enfrenta uma doença limitante da vida Jorge Henrique Correa dos Santos Pamela Perina Braz Sola Manoel Antônio dos Santos Érika Arantes de Oliveira-Cardoso Medicina Pais criança cuidadores relações pai criança hospitalizada Este estudo qualitativo teve como objetivo compreender a experiência vivenciada pelo cuidador da criança/adolescente que enfrenta uma doença limitante da vida. Para tanto, foram entrevistados seis pais de crianças e adolescentes que se encontravam hospitalizados, com diagnósticos variados, em sua maior parte por doenças onco-hematológicas. Os dados foram coletados por meio de entrevista semiestruturada aplicada individualmente. A análise mostrou que, ao receber o diagnóstico da doença grave de um(a) filho(a) predominaram reações de surpresa, tristeza, desespero e relutância inicial em aceitar o diagnóstico. Sentimentos de medo, desconforto e vivências de culpa permearam a trajetória dos pais no adoecer do(a) filho(a). Crianças e adolescentes com diagnósticos limitantes da vida exigem tratamento intensivo e de alta complexidade tecnológica. A hospitalização aparece como um momento especialmente difícil para os pais, gerando fadiga crônica, esgotamento físico e emocional. Na percepção dos pais, a comunicação com os profissionais foi satisfatória, sendo vista como um fator positivo que contribui para amenizar as dificuldades de enfrentar as situações críticas. A experiência paterna frente à doença limitante da vida foi considerada um fator de mudança de vida. Esses resultados mostram a necessidade de intervenções psicológicas de apoio para auxiliarem os pais e demais familiares a enfrentarem os desafios encontrados. 2022 artículo científico 1806-2490 https://www.redalyc.org/articulo.oa?id=139473537006 https://www.redalyc.org/journal/1394/139473537006/ https://www.redalyc.org/journal/1394/139473537006/html/ https://www.redalyc.org/journal/1394/139473537006/139473537006.epub https://www.redalyc.org/journal/1394/139473537006/movil 10.32467/issn.19982-1492v19n1a6 pt http://www.redalyc.org/revista.oa?id=1394 Vínculo - Revista do NESME application/pdf Núcleo de Estudos em Saúde Mental e Psicanálise das Configurações Vinculares Vínculo - Revista do NESME (Brasil) Num.1 Vol.19

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