Recommendations for starting a grown up congenital heart disease (GUCH) unit

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Main Author: Fernando Tadeu Vasconcelos Amaral
Format: Artículo científico
Language:en
Published: Sociedade Brasileira de Cirurgia Cardiovascular 2015
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author Fernando Tadeu Vasconcelos Amaral
author_facet Fernando Tadeu Vasconcelos Amaral
contents Recommendations for starting a grown up congenital heart disease (GUCH) unit Fernando Tadeu Vasconcelos Amaral Paulo Henrique Manso André Schmidt Ricardo Nilson Sgarbieri Walter Villela de Andrade Vicente Clovis Carbone Junior Jane Somerville Medicina Hear Adult Congenital Abnormalities During the last decades, advances in diagnosis and treat - ment of congenital heart disease have allowed many individuals to reach adulthood. Due mainly to the great diagnostic diversi - ty and to the co-morbidities usually present in this age group, these patients demand assistance in a multidisciplinary facility if an adequate attention is aimed. In this paper we reviewed, based in the international literature and also on the authors’ experience, the structural conditions that should be available for these patients. We highlighted aspects like the facility char - acteristics, the criteria usually adopted for patient transfer from the paediatric setting, the composition of the medical and pa - ra-medical staff taking into account the specific problems, and also the model of outpatient and in-hospital assistance. We also emphasized the importance of patient data storage, the funda - mental necessity of institutional support and also the compro - mise to offer professional training. The crucial relevance of clin - ical research is also approached, particularly the development of multicenter studies as an appropriate methodology for this heterogeneous patient population. 2015 artículo científico 0102-7638 https://www.redalyc.org/articulo.oa?id=398942249014 en http://www.redalyc.org/revista.oa?id=3989 Revista Brasileira de Cirurgia Cardiovascular/Brazilian Journal of Cardiovascular Surgery application/pdf Sociedade Brasileira de Cirurgia Cardiovascular Revista Brasileira de Cirurgia Cardiovascular/Brazilian Journal of Cardiovascular Surgery (Brasil) Num.3 Vol.30
format Artículo científico
id redalyc_398942249014
institution Redalyc
language en
publishDate 2015
publisher Sociedade Brasileira de Cirurgia Cardiovascular
spellingShingle Recommendations for starting a grown up congenital heart disease (GUCH) unit
Fernando Tadeu Vasconcelos Amaral
Medicina
Hear
Adult
Congenital Abnormalities
Recommendations for starting a grown up congenital heart disease (GUCH) unit Fernando Tadeu Vasconcelos Amaral Paulo Henrique Manso André Schmidt Ricardo Nilson Sgarbieri Walter Villela de Andrade Vicente Clovis Carbone Junior Jane Somerville Medicina Hear Adult Congenital Abnormalities During the last decades, advances in diagnosis and treat - ment of congenital heart disease have allowed many individuals to reach adulthood. Due mainly to the great diagnostic diversi - ty and to the co-morbidities usually present in this age group, these patients demand assistance in a multidisciplinary facility if an adequate attention is aimed. In this paper we reviewed, based in the international literature and also on the authors’ experience, the structural conditions that should be available for these patients. We highlighted aspects like the facility char - acteristics, the criteria usually adopted for patient transfer from the paediatric setting, the composition of the medical and pa - ra-medical staff taking into account the specific problems, and also the model of outpatient and in-hospital assistance. We also emphasized the importance of patient data storage, the funda - mental necessity of institutional support and also the compro - mise to offer professional training. The crucial relevance of clin - ical research is also approached, particularly the development of multicenter studies as an appropriate methodology for this heterogeneous patient population. 2015 artículo científico 0102-7638 https://www.redalyc.org/articulo.oa?id=398942249014 en http://www.redalyc.org/revista.oa?id=3989 Revista Brasileira de Cirurgia Cardiovascular/Brazilian Journal of Cardiovascular Surgery application/pdf Sociedade Brasileira de Cirurgia Cardiovascular Revista Brasileira de Cirurgia Cardiovascular/Brazilian Journal of Cardiovascular Surgery (Brasil) Num.3 Vol.30
title Recommendations for starting a grown up congenital heart disease (GUCH) unit
topic Medicina
Hear
Adult
Congenital Abnormalities
url https://www.redalyc.org/articulo.oa?id=398942249014