A consideration of ethical and legal issues in multi-site studies

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Autore principale: Sana Loue
Natura: Artículo científico
Lingua:en
Pubblicazione: Universidad de Chile 2004
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author Sana Loue
author_facet Sana Loue
contents A consideration of ethical and legal issues in multi-site studies Sana Loue Filosofía multi site studies confidentiality Significant ethical and legal issues may arise in conjunction with the conduct of multi-site studies. For example, different cultures may have varying concepts of personhood. The United States, for instance, places significant emphasis on the autonomy of each individual, while many other societies rely to a greater degree on defining an individual with reference to his or her roles or relationships to others. These differing orientations may have implications for informed consent procedures and for the design of procedures to maintain confidentiality of the data and privacy of the participants. The development of procedures for the maintenance of confidentiality and privacy must also consider any differences in reporting requirements between the sites that relate to sexually transmitted diseases and child abuse. The implications of such differences for the conduct of multi-site studies are examined. 2004 artículo científico 0717-5906 https://www.redalyc.org/articulo.oa?id=55410109 en http://www.redalyc.org/revista.oa?id=554 Acta Bioethica application/pdf Universidad de Chile Acta Bioethica (Chile) Num.1 Vol.X
format Artículo científico
id redalyc_55410109
institution Redalyc
language en
publishDate 2004
publisher Universidad de Chile
spellingShingle A consideration of ethical and legal issues in multi-site studies
Sana Loue
Filosofía
multi
site studies
confidentiality
A consideration of ethical and legal issues in multi-site studies Sana Loue Filosofía multi site studies confidentiality Significant ethical and legal issues may arise in conjunction with the conduct of multi-site studies. For example, different cultures may have varying concepts of personhood. The United States, for instance, places significant emphasis on the autonomy of each individual, while many other societies rely to a greater degree on defining an individual with reference to his or her roles or relationships to others. These differing orientations may have implications for informed consent procedures and for the design of procedures to maintain confidentiality of the data and privacy of the participants. The development of procedures for the maintenance of confidentiality and privacy must also consider any differences in reporting requirements between the sites that relate to sexually transmitted diseases and child abuse. The implications of such differences for the conduct of multi-site studies are examined. 2004 artículo científico 0717-5906 https://www.redalyc.org/articulo.oa?id=55410109 en http://www.redalyc.org/revista.oa?id=554 Acta Bioethica application/pdf Universidad de Chile Acta Bioethica (Chile) Num.1 Vol.X
title A consideration of ethical and legal issues in multi-site studies
topic Filosofía
multi
site studies
confidentiality
url https://www.redalyc.org/articulo.oa?id=55410109