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| Format: | Artículo científico |
| Sprache: | en |
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Universidad de Sonora
2024
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| Online-Zugang: | https://www.redalyc.org/articulo.oa?id=672978747022 https://www.redalyc.org/journal/6729/672978747022/ https://www.redalyc.org/journal/6729/672978747022/html/ https://www.redalyc.org/journal/6729/672978747022/672978747022.epub https://www.redalyc.org/journal/6729/672978747022/movil |
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Inhaltsangabe:
- Cells, Genes and Data: Biobanks as Common Goods Boris Julián Pinto-Bustamante Multidisciplinaria (Ciencias Naturales y Exactas) Bioethics Community Tissue Preservation Biological Specimen Banks Based Participatory Research Contemporary biomedical research, propelled by bioinformatics, has revolutionized the exploration of the world through the collection and analysis of data from various biological materials. These advancements have given rise to ethical challenges, such as transformations in the practice of informed consent, issues related to privacy, equitable access to research benefits, and the privatization of genetic information. In this context, the governance of biobanks introduces ethical and legal tensions between liberal and communitarian perspectives. The privatization of biomaterials hinders global collaboration and restricts the involvement of developing countries. Experiences of community-based governance in Norway, New Zealand, Argentina, and other cases suggest alternative models. Community-based governance of biobanks emerges as an ethical approach that acknowledges cultural values such as privacy, cooperation, and active community participation in decision-making. 2024 artículo científico 1665-1456 https://www.redalyc.org/articulo.oa?id=672978747022 https://www.redalyc.org/journal/6729/672978747022/ https://www.redalyc.org/journal/6729/672978747022/html/ https://www.redalyc.org/journal/6729/672978747022/672978747022.epub https://www.redalyc.org/journal/6729/672978747022/movil 10.18633/biotecnia.v26.2374 en http://www.redalyc.org/revista.oa?id=6729 Biotecnia application/pdf Universidad de Sonora Biotecnia (México) Vol.26