Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
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| Format: | Artículo científico |
| Language: | en |
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Universidad de La Sabana
2020
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| _version_ | 1876438352300867584 |
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| author | Gisele Weissheimer |
| author_facet | Gisele Weissheimer |
| contents | Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review Gisele Weissheimer Julia Mazul Santana Victória Beatriz Trevisan Nóbrega Martins Ruthes Verônica de Azevedo Mazza Medicina child family social support access to information Autism Spectrum Disorder Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included. Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community. 2020 artículo científico 1657-5997 https://www.redalyc.org/articulo.oa?id=74165028008 https://www.redalyc.org/journal/741/74165028008/ https://www.redalyc.org/journal/741/74165028008/html/ https://www.redalyc.org/journal/741/74165028008/74165028008.epub https://www.redalyc.org/journal/741/74165028008/movil 10.5294/aqui.2020.20.2.8 en http://www.redalyc.org/revista.oa?id=741 Aquichan application/pdf Universidad de La Sabana Aquichan (Colombia) Num.2 Vol.20 |
| format | Artículo científico |
| id | redalyc_74165028008 |
| institution | Redalyc |
| language | en |
| publishDate | 2020 |
| publisher | Universidad de La Sabana |
| spellingShingle | Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review Gisele Weissheimer Medicina child family social support access to information Autism Spectrum Disorder Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review Gisele Weissheimer Julia Mazul Santana Victória Beatriz Trevisan Nóbrega Martins Ruthes Verônica de Azevedo Mazza Medicina child family social support access to information Autism Spectrum Disorder Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD). Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included. Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources. Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community. 2020 artículo científico 1657-5997 https://www.redalyc.org/articulo.oa?id=74165028008 https://www.redalyc.org/journal/741/74165028008/ https://www.redalyc.org/journal/741/74165028008/html/ https://www.redalyc.org/journal/741/74165028008/74165028008.epub https://www.redalyc.org/journal/741/74165028008/movil 10.5294/aqui.2020.20.2.8 en http://www.redalyc.org/revista.oa?id=741 Aquichan application/pdf Universidad de La Sabana Aquichan (Colombia) Num.2 Vol.20 |
| title | Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review |
| topic | Medicina child family social support access to information Autism Spectrum Disorder |
| url | https://www.redalyc.org/articulo.oa?id=74165028008 https://www.redalyc.org/journal/741/74165028008/ https://www.redalyc.org/journal/741/74165028008/html/ https://www.redalyc.org/journal/741/74165028008/74165028008.epub https://www.redalyc.org/journal/741/74165028008/movil |