Systematic Review on Family Functioning in Families of Children With Rare Diseases
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Redalyc
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| Format: | Artículo científico |
| Language: | en |
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Consejo General de Colegios Oficiales de Psicólogos
2024
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| _version_ | 1876486418319015936 |
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| author | Florencia Assalone |
| author_facet | Florencia Assalone |
| contents | Systematic Review on Family Functioning in Families of Children With Rare Diseases Florencia Assalone Javiera Ortega Natalia Vázquez Victoria Vázquez Psicología caregivers rare diseases Family functioning impact of the diagnosis The present study is a systematic review of the research on family functioning in families who have a child with a rare disease. The research was carried out using the databases Pubmed, EBSCO, and Google Scholar, following PRISMA guidelines. After applying the inclusion and exclusion criteria to the 460 articles initially found, a total of 49 articles made up the final sample. The following topics regarding family functioning were identified: impact of diagnosis; caregiver’s role and responsibilities; family functioning; impact on the emotional sphere; effects on marital and social life; coping strategies; family, and care and health system. The results of this study may provide justification for considering factors associated with family functioning when diagnosing a rare disease and deciding on treatment. 2024 artículo científico 0214-7823 https://www.redalyc.org/articulo.oa?id=77876376006 https://www.redalyc.org/journal/778/77876376006/ https://www.redalyc.org/journal/778/77876376006/html/ https://www.redalyc.org/journal/778/77876376006/77876376006.epub https://www.redalyc.org/journal/778/77876376006/movil 10.23923/pap.psicol.3031 en http://www.redalyc.org/revista.oa?id=778 Papeles del Psicólogo application/pdf Consejo General de Colegios Oficiales de Psicólogos Papeles del Psicólogo (España) Num.1 Vol.45 |
| format | Artículo científico |
| id | redalyc_77876376006 |
| institution | Redalyc |
| language | en |
| publishDate | 2024 |
| publisher | Consejo General de Colegios Oficiales de Psicólogos |
| spellingShingle | Systematic Review on Family Functioning in Families of Children With Rare Diseases Florencia Assalone Psicología caregivers rare diseases Family functioning impact of the diagnosis Systematic Review on Family Functioning in Families of Children With Rare Diseases Florencia Assalone Javiera Ortega Natalia Vázquez Victoria Vázquez Psicología caregivers rare diseases Family functioning impact of the diagnosis The present study is a systematic review of the research on family functioning in families who have a child with a rare disease. The research was carried out using the databases Pubmed, EBSCO, and Google Scholar, following PRISMA guidelines. After applying the inclusion and exclusion criteria to the 460 articles initially found, a total of 49 articles made up the final sample. The following topics regarding family functioning were identified: impact of diagnosis; caregiver’s role and responsibilities; family functioning; impact on the emotional sphere; effects on marital and social life; coping strategies; family, and care and health system. The results of this study may provide justification for considering factors associated with family functioning when diagnosing a rare disease and deciding on treatment. 2024 artículo científico 0214-7823 https://www.redalyc.org/articulo.oa?id=77876376006 https://www.redalyc.org/journal/778/77876376006/ https://www.redalyc.org/journal/778/77876376006/html/ https://www.redalyc.org/journal/778/77876376006/77876376006.epub https://www.redalyc.org/journal/778/77876376006/movil 10.23923/pap.psicol.3031 en http://www.redalyc.org/revista.oa?id=778 Papeles del Psicólogo application/pdf Consejo General de Colegios Oficiales de Psicólogos Papeles del Psicólogo (España) Num.1 Vol.45 |
| title | Systematic Review on Family Functioning in Families of Children With Rare Diseases |
| topic | Psicología caregivers rare diseases Family functioning impact of the diagnosis |
| url | https://www.redalyc.org/articulo.oa?id=77876376006 https://www.redalyc.org/journal/778/77876376006/ https://www.redalyc.org/journal/778/77876376006/html/ https://www.redalyc.org/journal/778/77876376006/77876376006.epub https://www.redalyc.org/journal/778/77876376006/movil |