Bioethics in the big data era: health care and beyond
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| Format: | Artículo científico |
| Language: | en |
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Universitat de Barcelona
2017
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| _version_ | 1876482264275091456 |
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| author | Sarah Chan |
| author_facet | Sarah Chan |
| contents | Bioethics in the big data era: health care and beyond Sarah Chan Derecho big data genomics Bioethics data science social media 'Big data' and data-intensive research approaches are rapidly gaining momentum in health and biomedical research, with potential to transform health at all levels from personal to public. The use of 'big data' for health research, however, raises a number of ethical challenges. In this paper I discuss ethical aspects of the advent of big data in health. I argue that although public discourse has focused on immediate concerns relating to use of individuals' information, 'big health data' requires us to explore alternative conceptual approaches to research ethics, including the 'social contract' model. Further, we need to think beyond health research uses of data to the social consequences of big data epistemology and practice, and the moral implications of 'datafying' the human. 2017 artículo científico 1886-5887 https://www.redalyc.org/articulo.oa?id=78354511002 https://www.redalyc.org/journal/783/78354511002/ https://www.redalyc.org/journal/783/78354511002/html/ https://www.redalyc.org/journal/783/78354511002/78354511002.epub https://www.redalyc.org/journal/783/78354511002/movil en http://www.redalyc.org/revista.oa?id=783 Revista de Bioética y Derecho application/pdf Universitat de Barcelona Revista de Bioética y Derecho (España) Num.41 |
| format | Artículo científico |
| id | redalyc_78354511002 |
| institution | Redalyc |
| language | en |
| publishDate | 2017 |
| publisher | Universitat de Barcelona |
| spellingShingle | Bioethics in the big data era: health care and beyond Sarah Chan Derecho big data genomics Bioethics data science social media Bioethics in the big data era: health care and beyond Sarah Chan Derecho big data genomics Bioethics data science social media 'Big data' and data-intensive research approaches are rapidly gaining momentum in health and biomedical research, with potential to transform health at all levels from personal to public. The use of 'big data' for health research, however, raises a number of ethical challenges. In this paper I discuss ethical aspects of the advent of big data in health. I argue that although public discourse has focused on immediate concerns relating to use of individuals' information, 'big health data' requires us to explore alternative conceptual approaches to research ethics, including the 'social contract' model. Further, we need to think beyond health research uses of data to the social consequences of big data epistemology and practice, and the moral implications of 'datafying' the human. 2017 artículo científico 1886-5887 https://www.redalyc.org/articulo.oa?id=78354511002 https://www.redalyc.org/journal/783/78354511002/ https://www.redalyc.org/journal/783/78354511002/html/ https://www.redalyc.org/journal/783/78354511002/78354511002.epub https://www.redalyc.org/journal/783/78354511002/movil en http://www.redalyc.org/revista.oa?id=783 Revista de Bioética y Derecho application/pdf Universitat de Barcelona Revista de Bioética y Derecho (España) Num.41 |
| title | Bioethics in the big data era: health care and beyond |
| topic | Derecho big data genomics Bioethics data science social media |
| url | https://www.redalyc.org/articulo.oa?id=78354511002 https://www.redalyc.org/journal/783/78354511002/ https://www.redalyc.org/journal/783/78354511002/html/ https://www.redalyc.org/journal/783/78354511002/78354511002.epub https://www.redalyc.org/journal/783/78354511002/movil |