Big Data in Genomics: Ethical Challenges and Risks
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Redalyc
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| Format: | Artículo científico |
| Langue: | en |
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Universitat de Barcelona
2017
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| _version_ | 1876452132236820480 |
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| author | Marc Via |
| author_facet | Marc Via |
| contents | Big Data in Genomics: Ethical Challenges and Risks Marc Via Derecho privacy genomics genetics big data Bioethics Genomic information is a class of Big Data in expanding use thanks to technological developments. Here, we review three categories of ethical risks and challenges associated with genomic information: privacy issues, the management of incidental findings, and challenges in data storage and sharing. First, we need to implement strong mechanisms to protect privacy, but genomic data faces specific risks and we need to acknowledge the possibility of re-identification. Proper usage of genomic information has to be regulated, including recommendations on incidental finding management. Also, clear policies for data sharing and explicit efforts to promote central repositories of genomic data should be established. However, technology and new applications of genetic information will develop fast and we should anticipate potential new risks. 2017 artículo científico 1886-5887 https://www.redalyc.org/articulo.oa?id=78354511003 https://www.redalyc.org/journal/783/78354511003/ https://www.redalyc.org/journal/783/78354511003/html/ https://www.redalyc.org/journal/783/78354511003/78354511003.epub https://www.redalyc.org/journal/783/78354511003/movil en http://www.redalyc.org/revista.oa?id=783 Revista de Bioética y Derecho application/pdf Universitat de Barcelona Revista de Bioética y Derecho (España) Num.41 |
| format | Artículo científico |
| id | redalyc_78354511003 |
| institution | Redalyc |
| language | en |
| publishDate | 2017 |
| publisher | Universitat de Barcelona |
| spellingShingle | Big Data in Genomics: Ethical Challenges and Risks Marc Via Derecho privacy genomics genetics big data Bioethics Big Data in Genomics: Ethical Challenges and Risks Marc Via Derecho privacy genomics genetics big data Bioethics Genomic information is a class of Big Data in expanding use thanks to technological developments. Here, we review three categories of ethical risks and challenges associated with genomic information: privacy issues, the management of incidental findings, and challenges in data storage and sharing. First, we need to implement strong mechanisms to protect privacy, but genomic data faces specific risks and we need to acknowledge the possibility of re-identification. Proper usage of genomic information has to be regulated, including recommendations on incidental finding management. Also, clear policies for data sharing and explicit efforts to promote central repositories of genomic data should be established. However, technology and new applications of genetic information will develop fast and we should anticipate potential new risks. 2017 artículo científico 1886-5887 https://www.redalyc.org/articulo.oa?id=78354511003 https://www.redalyc.org/journal/783/78354511003/ https://www.redalyc.org/journal/783/78354511003/html/ https://www.redalyc.org/journal/783/78354511003/78354511003.epub https://www.redalyc.org/journal/783/78354511003/movil en http://www.redalyc.org/revista.oa?id=783 Revista de Bioética y Derecho application/pdf Universitat de Barcelona Revista de Bioética y Derecho (España) Num.41 |
| title | Big Data in Genomics: Ethical Challenges and Risks |
| topic | Derecho privacy genomics genetics big data Bioethics |
| url | https://www.redalyc.org/articulo.oa?id=78354511003 https://www.redalyc.org/journal/783/78354511003/ https://www.redalyc.org/journal/783/78354511003/html/ https://www.redalyc.org/journal/783/78354511003/78354511003.epub https://www.redalyc.org/journal/783/78354511003/movil |