Investigating Moral Distress in Clinical Research Professionals—A Deep Dive into Troubled Waters

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Autori principali: Elena Bosack, Dawn Bourne, Elizabeth Epstein, Mary Faith Marshall, Donna T. Chen
Natura: Artículo Open Access
Pubblicazione: Wiley 2025
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author Elena Bosack
Dawn Bourne
Elizabeth Epstein
Mary Faith Marshall
Donna T. Chen
author_facet Elena Bosack
Dawn Bourne
Elizabeth Epstein
Mary Faith Marshall
Donna T. Chen
Elena Bosack
Dawn Bourne
Elizabeth Epstein
Mary Faith Marshall
Donna T. Chen
collection Wiley Open Access
contents Investigating Moral Distress in Clinical Research Professionals—A Deep Dive into Troubled Waters Elena Bosack Dawn Bourne Elizabeth Epstein Mary Faith Marshall Donna T. Chen Ethics & Human Research ABSTRACTMoral distress occurs when professionals are constrained from taking what they believe to be ethically appropriate actions or are forced to take actions they believe are ethically inappropriate, challenging their professional identities and representing systems‐level issues within organizations. Moral distress has been recognized in a variety of health care‐related fields; however, the phenomenon is still comparatively unexplored among clinical research professionals (CRPs). In this qualitative study, we interviewed ten CRPs to unearth root causes of moral distress in this ethically unique profession. Four themes emerged from the data as contributors to moral distress: commodification of research; concern for research participants; compromised science; and structures of hierarchy. The experience of racism as a source of moral distress is also explored. The findings of this study indicate that the existence of moral distress in clinical research is troubling not only for the welfare of CRPs but also for the greater clinical research enterprise. 10.1002/eahr.60006 http://creativecommons.org/licenses/by/4.0/
doi_str_mv 10.1002/eahr.60006
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spellingShingle Investigating Moral Distress in Clinical Research Professionals—A Deep Dive into Troubled Waters
Elena Bosack
Dawn Bourne
Elizabeth Epstein
Mary Faith Marshall
Donna T. Chen
Ethics & Human Research
Investigating Moral Distress in Clinical Research Professionals—A Deep Dive into Troubled Waters Elena Bosack Dawn Bourne Elizabeth Epstein Mary Faith Marshall Donna T. Chen Ethics & Human Research ABSTRACTMoral distress occurs when professionals are constrained from taking what they believe to be ethically appropriate actions or are forced to take actions they believe are ethically inappropriate, challenging their professional identities and representing systems‐level issues within organizations. Moral distress has been recognized in a variety of health care‐related fields; however, the phenomenon is still comparatively unexplored among clinical research professionals (CRPs). In this qualitative study, we interviewed ten CRPs to unearth root causes of moral distress in this ethically unique profession. Four themes emerged from the data as contributors to moral distress: commodification of research; concern for research participants; compromised science; and structures of hierarchy. The experience of racism as a source of moral distress is also explored. The findings of this study indicate that the existence of moral distress in clinical research is troubling not only for the welfare of CRPs but also for the greater clinical research enterprise. 10.1002/eahr.60006 http://creativecommons.org/licenses/by/4.0/
title Investigating Moral Distress in Clinical Research Professionals—A Deep Dive into Troubled Waters
topic Ethics & Human Research
url https://onlinelibrary.wiley.com/doi/10.1002/eahr.60006