Imagen de Portada

“How Do You Live the Best Life You Can With This Pain?” A Qualitative Study of Adults Living With CF and Pain in the Modulator ERA

Fuente: Wiley Open Access

Guardado en:

Detalles Bibliográficos
Autores principales:	Deborah Friedman, Tara M. D. Mullen, Megan Behrman, Lenna Nikravan, Nivedita Chaudhary, Ruobin Wei, Anna M. Georgiopoulos, Lael M. Yonker, Jianghua He, Andrea L. Chadwick, Jonathan Greenberg, Amanda S. Bruce
Formato:	Artículo Open Access
Publicado:	Wiley 2025
Materias:	Pediatric Pulmonology
Acceso en línea:	Acceder al recurso
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

Ejemplares similares

Preliminary Psychometric Characteristics of the Cystic Fibrosis Coping Self‐Efficacy (CF‐CSE) Scale
por: Deborah Friedman, et al.
Publicado: (2025)

Validation of the Integrated Palliative Care Outcome Scale (IPOS) in adults with cystic fibrosis
por: Anna M. Georgiopoulos, et al.
Publicado: (2024)

Heterogeneity in Reported Side Effects Following Initiation of Elexacaftor‐Tezacaftor‐Ivacaftor: Experiences at a Quaternary CF Care Center
por: Lena Papadakis, et al.
Publicado: (2024)

Severe Bleomycin‐Induced Pneumonitis Following Localized Injection in a Child With a TERT Variant and Short Telomeres
por: Yanki Okuducu, et al.
Publicado: (2026)

Stakeholder Priorities for Cystic Fibrosis Mental Health Research: A Community and Provider Survey
por: Anna M. Georgiopoulos, et al.
Publicado: (2026)

Investigating the Interplay Between Having Cystic Fibrosis and Being a Member of the LGBTQIA+ Community: Protocol for the PRIDE CF Study
por: Traci M. Kazmerski, et al.
Publicado: (2025)

“It's Like You're Feeding Your Child Twice”: Barriers and Facilitators to Human Milk Feeding Children With Cystic Fibrosis
por: Adrianne Colborg, et al.
Publicado: (2025)

Exploring Exercise as Airway Clearance in Cystic Fibrosis: A Qualitative Study From the ExACT‐CF Feasibility Trial
por: Emily Taylor, et al.
Publicado: (2026)

Overweight, understudied: The new need for weight loss modalities in CF patients
por: Sarah Schumacher, et al.
Publicado: (2024)

Improving implementation and team communication by integrating a cystic fibrosis transition readiness (CF R.I.S.E.) program into electronic health records
por: Catherine Enochs, et al.
Publicado: (2024)

Living with alveolar capillary dysplasia with misalignment of the pulmonary veins—case report
por: Renata Wrobel Folescu Cohen, et al.
Publicado: (2024)

Exploration of MyVoice: CF as a Reproductive Health Decision Support Tool for Adolescent Females With Cystic Fibrosis
por: Maya L. Albanowski, et al.
Publicado: (2025)

Infection and Inflammation in the Cystic fibrosis (CF) airway
por: Malena Cohen‐Cymberknoh
Publicado: (2024)

Lived experiences of caregivers with infants treated at home with continuous invasive or noninvasive ventilation
por: Jon Maniaci, et al.
Publicado: (2024)

Mounier‐Kuhn Syndrome Flare With Pleuritic Chest Pain: A Discussion of Complications and Management
por: Geran Maule, et al.
Publicado: (2026)

Comment on “Phenotype Overlap and Lung Function in Childhood Asthma: The Interaction Between T2 and Non‐T2 Responses”
por: S. Dhanya Dedeepya, et al.
Publicado: (2026)

Multidimensional Impacts of Elexacaftor/Tezacaftor/Ivacaftor: Comparisons of Physical and Mental Health Providers' Observations in Cystic Fibrosis in Europe and the United States
por: Sonia Graziano, et al.
Publicado: (2025)

Body Image Perceptions and Elexacaftor/Tezacaftor/Ivacaftor (ETI) Use in Adolescents and Young Adults Living With Cystic Fibrosis
por: Emma R. Lyons, et al.
Publicado: (2025)

Cystic Fibrosis Learning Network Telehealth Innovation Lab During the COVID‐19 Pandemic: Impact on Access to Care, Outcomes, and a New CF Care Model
por: Dana Albon, et al.
Publicado: (2025)

Treatment of small as well as large declines in lung function enhances recovery to baseline in people with CF
por: Michael S. Schechter, et al.
Publicado: (2024)

Improving Modulator Management and Side Effect Screening: A CF Learning Network Innovation Lab
por: Kevin P. Lonabaugh, et al.
Publicado: (2025)

Relating Improvement in Gastrointestinal (CFAbd‐Score © ) and Sinonasal (SNOT) Symptoms During Therapy With Elexacaftor/Tezacaftor/Ivacaftor in CF Patients
por: Jochen G. Mainz, et al.
Publicado: (2026)

Identifying Gaps and Disparities in Screening for Cystic Fibrosis Associated Liver Disease: Insights From a CF Center Analysis
por: Alaa Abdelghani, et al.
Publicado: (2025)

Pediatric Pulmonology 2023 year in review: Rare and diffuse lung disease
por: Daniel M. Hinds, et al.
Publicado: (2024)

Investigating the Potential Hearing Impairment and Ototoxicity in Children up to Six Years With Cystic Fibrosis After Aminoglycoside Exposure (PIANO‐CF Extension)
por: Elena K. Schneider‐Futschik, et al.
Publicado: (2025)

Co‐Occurring Conditions and Sleep Symptoms Associated With Obstructive Sleep Apnea in Children With Down Syndrome
por: Taylor A. Curry, et al.
Publicado: (2025)

Outcomes and Recommendations From Telehealth Asthma Clinics in Underserved Schools
por: Rachel Sweenie, et al.
Publicado: (2025)

Perceptions of Telehealth in Pediatric Pulmonary Clinic Post‐Pandemic
por: Jaclyn Davis, et al.
Publicado: (2025)

Improved tracheostomy‐dependent patient outcomes after implementation of the Pediatric Resident Education in Pulmonary (PREP) Boot Camp
por: Erin K. Khan, et al.
Publicado: (2024)

Parent‐Reported Usability of a Patient Portal‐Based Asthma Care Tool for Parents of Children With Asthma
por: M. K. Ross, et al.
Publicado: (2025)

Plasma Microbial Cell‐Free DNA Metagenomic Next‐Generation Sequencing in People With Cystic Fibrosis
por: Mollie G. Wasserman, et al.
Publicado: (2024)

Fibrin IS present in plastic bronchitis casts and can impact treatment!
por: Deborah R. Liptzin, et al.
Publicado: (2024)

School‐Based Health Providers' Approaches to Social Risk Screening for Pediatric Asthma: A Qualitative Study
por: Vera Borkowski, et al.
Publicado: (2025)

Qualitative Experiences and Depression/Anxiety Scores in Parents of Children With Cystic Fibrosis Transmembrane Conductance Regulator Related Metabolic Syndrome
por: Lynne Carty, et al.
Publicado: (2025)

Get SMART? Understanding Pediatric Pulmonologists' Perspectives on Implementation of SMART
por: Charles Slocum, et al.
Publicado: (2026)

Intravenous Salbutamol for Children With Severe Acute Asthma on a Dutch Pediatric Ward: An Effective and Child‐Friendly Alternative
por: I. M. Schellekens, et al.
Publicado: (2025)

Introduction of Ivacaftor/Lumacaftor in Children With Cystic Fibrosis Homozygous for F508del in the Netherlands: A Nationwide Real‐Life Study
por: A. M. Zwitserloot, et al.
Publicado: (2025)

Remote Monitoring Is Associated With Less Routine and Emergency Care in Pediatric Asthma
por: M. C. Oppelaar, et al.
Publicado: (2025)

Radon and Non‐Cancer Pulmonary Health Effects in Children: A State of The Art Review
por: Tina M. Banzon, et al.
Publicado: (2026)

Adding fuel to the fire: The growing case for global access to cystic fibrosis transmembrane conductance regulator modulator therapy
por: Brenda M. Morrow, et al.
Publicado: (2024)