Copertina

Evaluating the impact of the self‐BAT screening tool on patient outcomes: Results of the let's talk period project

Fuente: Wiley Open Access

Salvato in:

Dettagli Bibliografici
Autori principali:	Laura McDonald, Julie Grabell, Jennifer Leung, Wilma Hopman, Paula James
Natura:	Artículo Open Access
Pubblicazione:	Wiley 2024
Soggetti:	Haemophilia
Accesso online:	Acceder al recurso
Tags:	Aggiungi Tag Nessun Tag, puoi essere il primo ad aggiungerne!!

Documenti analoghi

Validating the Online Self‐Administered Bleeding Assessment Tool (Self‐BAT) as a Screening Tool for Bleeding Disorders
di: Veronica DeYoung, et al.
Pubblicazione: (2025)

Haemophilia testing of young girls in Canada: Describing the current recommendations for factor level and genetic testing and the experiences of Canadian parents
di: Megan Chaigneau, et al.
Pubblicazione: (2024)

Differences and similarities in patient‐reported outcomes among men and women with haemophilia
di: Christine L. Kempton, et al.
Pubblicazione: (2024)

Pain attitudes and pain outcomes among people with bleeding disorders: Results from community voices in research
di: Corey Pierce, et al.
Pubblicazione: (2024)

Primary prophylaxis implementation and long‐term joint outcomes in Swedish haemophilia A patients
di: Alexandros Arvanitakis, et al.
Pubblicazione: (2024)

Chain‐mediating effects of kinesiophobia and self‐efficacy on pain catastrophizing and physical activity in haemophilia patients
di: Wenjing Zhang, et al.
Pubblicazione: (2024)

Test–retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study
di: Randall Curtis, et al.
Pubblicazione: (2024)

Real‐world experience of rIX‐FP prophylaxis at dosing intervals of 14 days or more in adult patients with haemophilia B in Italy – Results from IDEAL Part B
di: Antonio Coppola, et al.
Pubblicazione: (2024)

Benefits of physical activity self‐monitoring in patients with haemophilia: a prospective study with one‐year follow‐up
di: Sofía Pérez‐Alenda, et al.
Pubblicazione: (2024)

Real world management of individuals with severe FXI deficiency and its impact on clinical outcomes: Experience from a haemophilia treatment centre
di: S Julia Wu, et al.
Pubblicazione: (2024)

Development of the coreHEM mental health patient‐reported outcome measure – A novel mental health outlook measure for people with haemophilia
di: Elizabeth Clearfield, et al.
Pubblicazione: (2024)

Outcomes and outcome measures
di: Giancarlo Castaman, et al.
Pubblicazione: (2024)

Adult haematology clinics for menstruating/pregnant patients: A single center experience and lessons learned
di: Bethany Samuelson Bannow, et al.
Pubblicazione: (2024)

Riding the wave of change: Providing solid ground to support nursing with patient transitions to novel haemophilia therapies
di: Erica Crilly, et al.
Pubblicazione: (2024)

A core outcome set for prophylaxis and perioperative treatment of von Willebrand disease: The coreVWD initiative
di: Elizabeth Clearfield, et al.
Pubblicazione: (2024)

Dentistry for patients with haemophilia: Trialling a safe and economical change in management
di: Pritam Daniel Sundaresan, et al.
Pubblicazione: (2024)

A clinical practice guideline for primary care physiotherapy in patients with haemophilia
di: Johan Blokzijl, et al.
Pubblicazione: (2024)

Haemophilia Joint Health Score Ranges Across the Lifespan: Variation by Haemophilia Type and Severity
di: Beth Boulden Warren, et al.
Pubblicazione: (2026)

Spectrum, clinical characteristics and outcome of von Willebrand disease in Oman
di: Shamsa Alkaabi, et al.
Pubblicazione: (2024)

Evaluation of Access to Care for Women Carriers of Haemophilia in Haemophilia Treatment Centres: A Multinational Experience
di: Cathy Harrison, et al.
Pubblicazione: (2026)

Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project
di: Ngoc Anh Thu Nguyen, et al.
Pubblicazione: (2024)

EAHAD haemophilia gene therapy clinical outcome database (EAHAD‐GTD)
di: Wolfgang Miesbach, et al.
Pubblicazione: (2024)

Hemophilia Severity and Its Association With Mental Health and Health‐Related Quality of Life—Results From a Cross‐Sectional Multicenter Study
di: Francesca Schmitt, et al.
Pubblicazione: (2026)

Acquired haemophilia A in Finland: A nationwide study of incidence, treatment and outcomes
di: Vuokko Nummi, et al.
Pubblicazione: (2024)

Recommendations for Psychosocial Support during Gene Therapy: Results From an EAHAD Interdisciplinary Roundtable
di: Lorynn Teela, et al.
Pubblicazione: (2025)

The impact of emicizumab on the clinical validation of new therapies for haemophilia A
di: Cedric Hermans, et al.
Pubblicazione: (2024)

30‐sit‐to‐stand power is a better tool than isometric knee extensor strength to detect motor impairment in people with haemophilic arthropathy
di: Carlos Cruz‐Montecinos, et al.
Pubblicazione: (2024)

A novel FGG missense variant associated with fibrinogen storage disease in a large family from Quebec
di: Marie‐Claude Pelland‐Marcotte, et al.
Pubblicazione: (2024)

Real‐World Unmet Treatment Needs for Patients With Haemophilia: Results From the Global Adelphi Disease Specific Programme Database
di: Víctor Jiménez Yuste, et al.
Pubblicazione: (2026)

Safety and Efficacy of Damoctocog Alfa Pegol Prophylaxis in Patients With Severe Haemophilia A: Results of an Interventional, Post‐Marketing Study
di: Pål André Holme, et al.
Pubblicazione: (2025)

Voices of patients with hemophilia: Life‐changing gene therapy
di: Genevieve Pietu, et al.
Pubblicazione: (2024)

Evaluation of Point‐of‐Care Ultrasound in Paediatric Haemophilic Arthropathy: A Prospective Comparative Study With Comprehensive Ultrasound and MRI
di: Caroline Rutten, et al.
Pubblicazione: (2025)

Reduced doses of emicizumab achieve good efficacy: Results from a national‐wide multicentre real‐world study in China
di: Yuan Xu, et al.
Pubblicazione: (2024)

The haemophilia joint health score for the assessment of joint health in patients with haemophilia
di: Cihan Ay, et al.
Pubblicazione: (2024)

The frequency of sarcopenia in haemophilia patients: Effects on musculoskeletal health and functional performance
di: Bora Uzuner, et al.
Pubblicazione: (2024)

Clinical, Phenotypic and Genotypic Characteristics of Von Willebrand Disease in Afro‐Caribbeans: Results From a Study in Martinique Island, French West Indies
di: Marie‐Daniéla Dubois, et al.
Pubblicazione: (2025)

Self‐conducted sonographic monitoring of the knee in patients with haemophilia—A feasibility study
di: Anna Christina Strauss, et al.
Pubblicazione: (2024)

Bone mineral density in haemophilia patients: A systematic review and meta‐analysis
di: Meiling Zhang, et al.
Pubblicazione: (2024)

Eptacog beta for the management of patients with haemophilia A and B with inhibitors: A European perspective
di: Wolfgang Miesbach, et al.
Pubblicazione: (2024)

Assessing joint health in haemophilia patients: The combined value of physical examination and ultrasound imaging
di: Roberta Gualtierotti, et al.
Pubblicazione: (2024)