Cover Image

‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases

Fuente: Wiley Open Access

Saved in:

Bibliographic Details
Main Authors:	Christina Q. Nguyen, Didu S. T. Kariyawasam, Tsz Shun Jason Ngai, James Nguyen, Kristine Alba‐Concepcion, Sarah E. Grattan, Elizabeth E. Palmer, Kate Hetherington, Claire E. Wakefield, Russell C. Dale, Sue Woolfenden, Shekeeb Mohammad, Michelle A. Farrar
Format:	Artículo Open Access
Published:	Wiley 2024
Subjects:	Health Expectations
Online Access:	Acceder al recurso
Tags:	Add Tag No Tags, Be the first to tag this record!

Similar Items

The Building Blocks for Successful Hub Implementation for Migrant and Refugee Families and Their Children in the First 2000 Days of Life
by: Michael Hodgins, et al.
Published: (2025)

Consumers' Contribution to Health Research: Australian Research Organisations' Perspectives
by: Mingming Zhou, et al.
Published: (2025)

Families' Strategies for Navigating Care for Their Child With Cerebral Palsy: A Qualitative Study
by: Silje Askeland, et al.
Published: (2025)

Partnering With Teens With Past Suicide‐Related Crises: Development, Application and Refinement of Safety Procedures for Co‐Design
by: Marisa E. Marraccini, et al.
Published: (2026)

The process of co‐designing a model of social prescribing: An Australian case study
by: Candice Oster, et al.
Published: (2024)

“I Became the Messenger Between the Hospitals”: A Study on the Journeys of People With Cancer Using the Critical Incident Technique
by: Ragnhild Halvorsrud, et al.
Published: (2025)

Recognising Consumers' Contributions to Health Research: Co‐Designing a Remuneration Framework for the Australian Context
by: Mingming Zhou, et al.
Published: (2025)

Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023
by: Essa Tawfiq, et al.
Published: (2025)

Exploring the Role of Peer Health Navigators in the Australian Health System: A Qualitative Interview Study
by: Natali Cvetanovska, et al.
Published: (2025)

Co‐Designing Aphasia Services: Evaluation of Involvement and Processes to Support Inclusion of People With Post Stroke Aphasia
by: Lisa Anemaat, et al.
Published: (2025)

Shared Decision‐Making and Body Mass Index in Australian Antenatal Care: An Exploratory OPTION12 Evaluation
by: Madeline Hawke, et al.
Published: (2024)

Training Adolescents and Young Adults to be Partners in Research: Co‐Creating the Young Patients' Autoimmune Research and Empowerment Alliance
by: Anya R. Khurana, et al.
Published: (2026)

How Do Australians Manage Diagnostic Testing Risks? Focus Groups Linked to a Model of Behaviour Change
by: Tomas Rozbroj, et al.
Published: (2024)

Consumer Experience of an Australian Multidisciplinary Long COVID Clinic That Incorporates Personalised Exercise Prescription: A Qualitative Analysis
by: Tanya Buettikofer, et al.
Published: (2025)

Attitudes and Behaviours Regarding COVID‐19 Mitigation Strategies in Australians With an Underlying Health Condition: A Cross‐Sectional Study
by: Sze‐Ee Soh, et al.
Published: (2024)

Co‐Designing a Sensory Support Intervention for Older Adults With Hearing and Vision Impairment Living in Australian Home Care Settings
by: Helen Gurteen, et al.
Published: (2025)

Co‐Producing Patient‐Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The ‘Listen to Me’ Project Protocol
by: Reema Harrison, et al.
Published: (2025)

Public Perceptions of the Australian Health System During COVID‐19: Findings From a 2021 Survey Compared to Four Previous Surveys
by: Louise A. Ellis, et al.
Published: (2024)

Embedding Public Involvement in a PhD Research Project With People Affected by Advanced Liver Disease
by: Cathy J. Beresford, et al.
Published: (2024)

“The Culturally and Linguistically Diverse Community Is Not Just Minoritised But Ignored”: Engaging Culturally and Linguistically Diverse Communities in Australia With Blood‐Borne Viruses and Sexually Transmissible Infections Healthcare
by: S. R. Okeke, et al.
Published: (2025)

Participant and caregiver perspectives on health feedback from a healthy lifestyle check
by: Miranda D. Lee, et al.
Published: (2024)

Understanding the Role of Patients and Carers in a Virtual Hospital Through Journey Mapping: Multi‐Method Triangulation Analysis
by: Kanesha Ward, et al.
Published: (2026)

Hospital Food Service Experiences Between Older Patients From English‐ and Non‐English Speaking Backgrounds in a Large Public Hospital in Australia: A Qualitative Analysis
by: Caitlin Wyman, et al.
Published: (2025)

Community health worker outreach to farmworkers in rural North Carolina: Learning from adaptations to the SARS‐CoV‐2 pandemic
by: Catherine E. LePrevost, et al.
Published: (2024)

Bringing Young People, Health and Social Care Professionals, Transition Champions and Policymakers Together Through Hybrid Methods of Participation: Creating a Space for Shared Understanding of What Is Required to Improve Young People's Healthcare Transition
by: Louise Porter, et al.
Published: (2025)

Co‐production and adaptation of a prison‐based problem‐solving workbook to support the mental health of patients housed within a medium‐ and low‐secure forensic service
by: Amanda E. Perry, et al.
Published: (2024)

Understanding Medicine Preferences of Older Adults: The Role of Messaging in a Multi‐Methods Experimental Survey
by: Alexander Chaitoff, et al.
Published: (2025)

‘We need more support and doctors that understand the process of tapering …’: A content analysis of free‐text responses to a questionnaire on discontinuing long‐term benzodiazepine receptor agonist use
by: Tom Lynch, et al.
Published: (2024)

Science Shops as key intermediary structures to respond to the current health research agenda bias: Evidence from the InSPIRES project
by: Aina Estany, et al.
Published: (2024)

Qualitative Exploration of Speech Pathologists' Experiences and Priorities for Aphasia Service Design: Initial Stage of an Experience‐Based Co‐Design Project to Improve Aphasia Services
by: Lisa Anemaat, et al.
Published: (2024)

Rethinking ‘Recovery’: A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom
by: Alice MacLean, et al.
Published: (2025)

Mobilising Knowledge for General Practice Decarbonisation: Maximising Impact Through a Multi‐Stakeholder Workshop
by: Ana Raquel Nunes, et al.
Published: (2025)

The Dutch Citizen's Understanding and Perception of the Actors Involved in the Netherlands' COVID‐19 Pandemic Response: A Focus Group Study During the First Pandemic Wave
by: L. S. Kengne Kamga, et al.
Published: (2024)

Healthy from the Start: Co‐Designing Sleep, Nutrition and Physical Activity Resources for Young Shiftworkers—Novel Implementation and Evaluation
by: Alexandra E. Shriane, et al.
Published: (2024)

Co‐Producing Personalised Discharge Planning: Developing a Toolkit to Improve Caregiver Involvement in Hospital Transitions
by: Kathryn McEwan, et al.
Published: (2025)

Authors' Response to the Letter by Sun et al.
by: Hannah Rutherford, et al.
Published: (2026)

Experiences of Home‐Based Pulmonary Rehabilitation With mHealth and Centre‐Based Pulmonary Rehabilitation in People With Chronic Obstructive Pulmonary Disease: A Qualitative Study
by: Hannah Rutherford, et al.
Published: (2025)

The Supporter Needs Supporting Too: A Qualitative Study to Understand the Maternity Care Experience for Partners Following a Previous Perinatal Death
by: Debbie M. Smith, et al.
Published: (2025)

Using co‐design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention
by: Fiona Jones, et al.
Published: (2024)

The acceptability of, and informational needs related to, self‐collection cervical screening among women of Indian descent living in Victoria, Australia: A qualitative study
by: Ana Machado Colling, et al.
Published: (2024)