Buchumschlag

The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa

Fuente: Wiley Open Access

Gespeichert in:

Bibliographische Detailangaben
Hauptverfasser:	Gudrun Salamon, Ursula Field‐Werners, Sophie Strobl, Vinzenz Hübl, Anja Diem
Format:	Artículo Open Access
Veröffentlicht:	Wiley 2024
Schlagworte:	Health Expectations
Online-Zugang:	Acceder al recurso
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Ähnliche Einträge

A co‐created multimethod evaluation of recovery education in Ireland
von: Ann O'Brien, et al.
Veröffentlicht: (2024)

Children and Young People's Priorities for Mental Health Research in Northern Ireland
von: Siobhan O'Neill, et al.
Veröffentlicht: (2025)

Pesticide Exposure and Parkinson's Disease: A Qualitative Study of Experiences in Ireland
von: Lucy M. Collins, et al.
Veröffentlicht: (2025)

‘Physical well‐being is our top priority’: Healthcare professionals' challenges in supporting psychosocial well‐being in stroke services
von: Felicity A. S. Bright, et al.
Veröffentlicht: (2024)

Investigating the impact of primary care networks on continuity of care in English general practice: Analysis of interviews with patients and clinicians from a mixed methods study
von: Mhorag Goff, et al.
Veröffentlicht: (2024)

Recurrent Miscarriage and Infertility Services and Supports: A Qualitative Study of Views and Experiences in the Republic of Ireland
von: Laura Aoife Linehan, et al.
Veröffentlicht: (2025)

Commissioning and co‐production in health and care services in the United Kingdom and Ireland: An exploratory literature review
von: Rebecca J. Scott, et al.
Veröffentlicht: (2024)

‘It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number’. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study
von: Tamina‐Laetitia Vielgrader, et al.
Veröffentlicht: (2026)

Perceived Impact of Healthcare Relationships and Interactions on Parental Experiences of Prenatal Diagnosis and Termination of Pregnancy for Foetal Anomaly on the Island of Ireland
von: Suzanne Heaney, et al.
Veröffentlicht: (2024)

Enablers and Barriers to an Experience‐Based Co‐Design Process to Develop Service Improvements in Enhanced Community Care in Ireland: A Qualitative Study
von: Fay O'Donoghue, et al.
Veröffentlicht: (2025)

‘I Do It All Alone’: The Burdens and Benefits of Being Diagnosed With, and Treated for, Colorectal Cancer During the Covid‐19 Pandemic
von: Christina M. Dobson, et al.
Veröffentlicht: (2024)

Family‐centred care interventions for children with chronic conditions: A scoping review
von: Andrea J. Chow, et al.
Veröffentlicht: (2024)

The Impact of Social Isolation on Treatment Burden Among Community‐Dwelling Adults With Disability and Multimorbidity: A Longitudinal Qualitative Study in Urban China
von: Jiahui Dong, et al.
Veröffentlicht: (2026)

Community views on the secondary use of general practice data: Findings from a mixed‐methods study
von: Annette J. Braunack‐Mayer, et al.
Veröffentlicht: (2024)

Effects of a shared decision‐making implementation programme on patient‐centred communication in oncology—Secondary analysis of a randomised controlled trial
von: Anja Lindig, et al.
Veröffentlicht: (2024)

Establishing a standing patient advisory board in family practice research: A qualitative evaluation from patients' and researchers' perspectives
von: Jennifer Engler, et al.
Veröffentlicht: (2024)

Novel motivational interviewing‐based intervention improves engagement in physical activity and readiness to change among adolescents with chronic pain
von: Katalin Forgács‐Kristóf, et al.
Veröffentlicht: (2024)

The (in)visibility of deafness: Identity, stigma, quality of life and the potential role of totally implantable cochlear implants
von: Chi Yhun Lo, et al.
Veröffentlicht: (2024)

Co‐producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general population
von: Clarissa Giebel, et al.
Veröffentlicht: (2024)

Adapting a Preparatory Skills‐Building Programme for Carers of People With Cancer Through Co‐Design: The iCanSupport Project
von: Bróna Nic Giolla Easpaig, et al.
Veröffentlicht: (2024)

Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative study
von: Nan Lin, et al.
Veröffentlicht: (2024)

Patient and public involvement in the development of health services: Engagement of underserved populations in a quality improvement programme for inflammatory bowel disease using a community‐based participatory approach
von: Elena Sheldon, et al.
Veröffentlicht: (2024)

What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines
von: Grace Fox, et al.
Veröffentlicht: (2024)

‘The burden is very much on yourself’: A qualitative study to understand the illness and treatment burden of hearing loss across the life course
von: Sian K. Smith, et al.
Veröffentlicht: (2024)

The Challenging Process of Developing an Antenatal Social Intervention for Parents From Culturally Diverse Backgrounds to Reduce Postnatal Distress: A Participatory Action Research Study
von: Sophie Isobel, et al.
Veröffentlicht: (2025)

‘I Want Everyone to Have It, and Everyone to Be on It’: A Feasibility Study of the Transforming Long Covid Intervention
von: Sarahjane Belton, et al.
Veröffentlicht: (2026)

Can a Public and Patient Involvement (PPI) Informed Participant Information Leaflet (PIL) Improve Trial Recruitment, Retention, and Quality of Decision Making? Results of a Randomised Controlled Double‐Blind Study Within a Trial (SWAT)
von: Linda O'Neill, et al.
Veröffentlicht: (2025)

‘It's Powerful’ The impact of involving children and young people in developing paediatric research agendas: A qualitative interview study
von: Laura Postma, et al.
Veröffentlicht: (2024)

Empowerment, Participation, and Person‐Centeredness as Prerequisites for Health‐Promoting Settings in Everyday Practice: A Swedish Case Study
von: Petra Nilsson Lindström, et al.
Veröffentlicht: (2026)

Fluctuating salience in those living with genetic risk of motor neuron disease: A qualitative interview study
von: Jade Howard, et al.
Veröffentlicht: (2024)

‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases
von: Christina Q. Nguyen, et al.
Veröffentlicht: (2024)

Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals
von: Jennifer S. Pigott, et al.
Veröffentlicht: (2024)

Assessing the impact of an online dementia awareness initiative co‐created with and for English, Arabic and Vietnamese speaking communities: A case study
von: Yousra Ali, et al.
Veröffentlicht: (2024)

Children's behavioural and emotional reactions towards living with congenital heart disease in Saudi Arabia: A grounded theory study
von: Nada Dahlawi, et al.
Veröffentlicht: (2024)

Acceptability of Self‐Sampling for Cervical Screening in Ethnically Diverse Groups in Northwest England: A Focus Group Study
von: Sophie Whitley, et al.
Veröffentlicht: (2025)

‘I am proud of how I handled it’. Exploring the impact of the COVID‐19 pandemic and related restrictions on well‐being of adults with severe mental illness using qualitative methods
von: L. van Rijn, et al.
Veröffentlicht: (2024)

Balancing feeling ‘prepared’ without feeling ‘devoured’: A qualitative study of self‐care from the perspective of self‐empowered persons living with Parkinson's disease in Sweden
von: Jamie L. Luckhaus, et al.
Veröffentlicht: (2024)

Young people's priorities for the self‐management of distress after stoma surgery due to inflammatory bowel disease: A consensus study using online nominal group technique
von: Benjamin Saunders, et al.
Veröffentlicht: (2024)

Consensus on the Structure and Content of Birth Plans: A Modified Delphi Study
von: Françoise Vendittelli, et al.
Veröffentlicht: (2024)

‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers
von: Leonie D. Schreck, et al.
Veröffentlicht: (2025)