Epidermolysis Bullosa in Spain: A Qualitative Analysis of Its Social Impact on Families With Diagnosed Minors
Fuente:
Wiley Open Access
Salvato in:
| Autori principali: | Juan Manuel Martínez‐Ripoll, Marta García‐Domingo, Yolanda María de la Fuente Robles |
|---|---|
| Natura: | Artículo Open Access |
| Pubblicazione: |
Wiley
2024
|
| Soggetti: | |
| Accesso online: | |
| Tags: |
Aggiungi Tag
Nessun Tag, puoi essere il primo ad aggiungerne!!
|
Documenti analoghi
Correction to “Creating Safer Cancer Care With Ethnic Minority Patients: A Qualitative Analysis of the Experiences of Cancer Service Staff”
Pubblicazione: (2025)
Pubblicazione: (2025)
Families' Strategies for Navigating Care for Their Child With Cerebral Palsy: A Qualitative Study
di: Silje Askeland, et al.
Pubblicazione: (2025)
di: Silje Askeland, et al.
Pubblicazione: (2025)
Social Determinants as Mediators of the Emotional State of People With Type 2 Diabetes and/or Hypertension During the COVID‐19 Pandemic in Ecuador and Spain
di: María José Sanchís‐Ramón, et al.
Pubblicazione: (2024)
di: María José Sanchís‐Ramón, et al.
Pubblicazione: (2024)
Announcements of Death During the COVID‐19 Pandemic: A Qualitative Study of Family Experiences
di: Axelle Avazeri, et al.
Pubblicazione: (2025)
di: Axelle Avazeri, et al.
Pubblicazione: (2025)
Parents' Experiences and Reported Outcomes of Family‐Centred Care: A Qualitative Systematic Review
di: Cansel Kocakabak, et al.
Pubblicazione: (2026)
di: Cansel Kocakabak, et al.
Pubblicazione: (2026)
A Qualitative Exploration of the Socioecological Influences Shaping the Diagnostic Experience and Self‐Management Practices Among People Newly Diagnosed With Multiple Sclerosis
di: Olivia Wills, et al.
Pubblicazione: (2024)
di: Olivia Wills, et al.
Pubblicazione: (2024)
A Qualitative Study to Improve How We Partner With Patients and Families in Healthcare Improvement Collaboratives
di: Cassandra B. Iroz, et al.
Pubblicazione: (2025)
di: Cassandra B. Iroz, et al.
Pubblicazione: (2025)
Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis
di: Bethan Page, et al.
Pubblicazione: (2025)
di: Bethan Page, et al.
Pubblicazione: (2025)
The Impact of Social Isolation on Treatment Burden Among Community‐Dwelling Adults With Disability and Multimorbidity: A Longitudinal Qualitative Study in Urban China
di: Jiahui Dong, et al.
Pubblicazione: (2026)
di: Jiahui Dong, et al.
Pubblicazione: (2026)
Impact of Contextual Factors on the Perceived Participation of People With Multiple Sclerosis and Gait Impairment Using Mobility Assistive Devices: A Qualitative Analysis
di: Elise‐Marie Dilger, et al.
Pubblicazione: (2024)
di: Elise‐Marie Dilger, et al.
Pubblicazione: (2024)
Strengthening the Delivery of Physical Healthcare for Adults Living With Serious Mental Illness – A Qualitative Description of Patient and Family Member Perspectives
di: Munazzah Ambreen, et al.
Pubblicazione: (2025)
di: Munazzah Ambreen, et al.
Pubblicazione: (2025)
Acceptability of Using a Decision Aid to Support Family Carers of People With Dementia Towards the End of Life: A Qualitative Study
di: Nathan Davies, et al.
Pubblicazione: (2024)
di: Nathan Davies, et al.
Pubblicazione: (2024)
Exploring the Experiences, Perceptions and Social Dynamics of Electronic Cigarette Users: A Qualitative Study
di: Ersan Gürsoy, et al.
Pubblicazione: (2024)
di: Ersan Gürsoy, et al.
Pubblicazione: (2024)
Patient Perceptions of Weight Stigma Experiences in Healthcare: A Qualitative Analysis
di: Kathleen M. Robinson, et al.
Pubblicazione: (2024)
di: Kathleen M. Robinson, et al.
Pubblicazione: (2024)
‘It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number’. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study
di: Tamina‐Laetitia Vielgrader, et al.
Pubblicazione: (2026)
di: Tamina‐Laetitia Vielgrader, et al.
Pubblicazione: (2026)
Psychosocial Impact of Breast Density Notification Through Breast Cancer Screening: A Qualitative Interview Study
di: Emma Grundtvig Gram, et al.
Pubblicazione: (2026)
di: Emma Grundtvig Gram, et al.
Pubblicazione: (2026)
‘Beyond the Scale’: A Qualitative Exploration of the Impact of Weight Stigma Experienced by Patients With Obesity in General Practice
di: Leona Ryan, et al.
Pubblicazione: (2024)
di: Leona Ryan, et al.
Pubblicazione: (2024)
Perceptions of the Impact of Comorbidity on the Bowel Cancer Screening Programme: Qualitative Study With Bowel Screening Participants and Staff
di: Delyth Price, et al.
Pubblicazione: (2024)
di: Delyth Price, et al.
Pubblicazione: (2024)
Experiences of Social Relationships for Adults Living With Multiple Long‐Term Conditions: A Qualitative Interview Study
di: Hilda Hounkpatin, et al.
Pubblicazione: (2025)
di: Hilda Hounkpatin, et al.
Pubblicazione: (2025)
A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK
di: Sarah McMullen, et al.
Pubblicazione: (2024)
di: Sarah McMullen, et al.
Pubblicazione: (2024)
Identifying the Impacts, Obstacles and Information Barriers for Parents of Children Living With Genetic Neurodevelopmental Disorders: A Qualitative Study
di: Karen J. Low, et al.
Pubblicazione: (2025)
di: Karen J. Low, et al.
Pubblicazione: (2025)
Listening to the Voices of Aboriginal and Torres Strait Islander Women in Regional and Remote Australia About Traumatic Brain Injury From Family Violence: A Qualitative Study
di: Elaine Wills, et al.
Pubblicazione: (2024)
di: Elaine Wills, et al.
Pubblicazione: (2024)
Assessing Unmet Social Needs in Multiple Sclerosis Care in Australia: A Qualitative Assessment of Feasibility, Barriers and Enablers
di: Megan R. Hawkins, et al.
Pubblicazione: (2026)
di: Megan R. Hawkins, et al.
Pubblicazione: (2026)
Exploring Benefits for Tibetan Cleft Lip and Palate Recipient Families From the Social Perspective of Healthcare Linkage
di: Jing Lin, et al.
Pubblicazione: (2025)
di: Jing Lin, et al.
Pubblicazione: (2025)
Exploring adolescents' experiences of continuing to wear face masks during COVID‐19: A qualitative descriptive study in Barcelona (Spain)
di: Mariela Aguayo‐González, et al.
Pubblicazione: (2024)
di: Mariela Aguayo‐González, et al.
Pubblicazione: (2024)
Evaluating Patient and Public Involvement and Engagement Activity Within the 3DPiPPIn Trial: A Qualitative Exploration of Contributors' Perspectives on Their Impact
di: Ime Umoabasi, et al.
Pubblicazione: (2026)
di: Ime Umoabasi, et al.
Pubblicazione: (2026)
Perceptions and Experiences of a Multimodal Rehabilitation Program for People With Post‐Acute COVID‐19: A Qualitative Study
di: Beatriz Carpallo‐Porcar, et al.
Pubblicazione: (2025)
di: Beatriz Carpallo‐Porcar, et al.
Pubblicazione: (2025)
Consumer Experience of an Australian Multidisciplinary Long COVID Clinic That Incorporates Personalised Exercise Prescription: A Qualitative Analysis
di: Tanya Buettikofer, et al.
Pubblicazione: (2025)
di: Tanya Buettikofer, et al.
Pubblicazione: (2025)
Rethinking ‘Recovery’: A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom
di: Alice MacLean, et al.
Pubblicazione: (2025)
di: Alice MacLean, et al.
Pubblicazione: (2025)
Public Contribution in Qualitative Research With Parents of Children Treated for Cancer: Description of and Reflections on a Collaborative Data Analysis Approach
di: Ella Thiblin, et al.
Pubblicazione: (2026)
di: Ella Thiblin, et al.
Pubblicazione: (2026)
Exploring Medication Safety in Transitions From Prison to Community: A Qualitative Study
di: Claire Planner, et al.
Pubblicazione: (2026)
di: Claire Planner, et al.
Pubblicazione: (2026)
Addressing the Health Needs of Underserved Populations Through Public Contribution: Prioritisation and Development of a Peer Support Intervention for Sexual and Gender Minority Forced Migrants
di: Tommy Carlsson, et al.
Pubblicazione: (2025)
di: Tommy Carlsson, et al.
Pubblicazione: (2025)
Co‐Production With Mental Health Family Carers: The Value, Outcomes and Benefits for Family Carers and Academic Researchers
di: Caroline Walters, et al.
Pubblicazione: (2026)
di: Caroline Walters, et al.
Pubblicazione: (2026)
Exploring Patient Understandings of Navigation Services Within Alberta's Healthcare System: A Qualitative Study
di: Sarah Rabi, et al.
Pubblicazione: (2025)
di: Sarah Rabi, et al.
Pubblicazione: (2025)
Care Pathways and Determinants in Essure® Contraceptive Implant Use and Removal: A Qualitative Study
di: Jéronine Tengue, et al.
Pubblicazione: (2026)
di: Jéronine Tengue, et al.
Pubblicazione: (2026)
No Time for Waste! Co‐Producing Practice Guidelines and Research Recommendations to Promote Earlier Diagnosis of Colorectal Cancer in Community Pharmacies: A Qualitative Analysis
di: Evelyn Brunsdon, et al.
Pubblicazione: (2025)
di: Evelyn Brunsdon, et al.
Pubblicazione: (2025)
Reducing the Delay in the Diagnosis of Bipolar Disorder: A Qualitative Study
di: Hoppe, et al.
Pubblicazione: (2025)
di: Hoppe, et al.
Pubblicazione: (2025)
Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals
di: Alice Faux‐Nightingale, et al.
Pubblicazione: (2025)
di: Alice Faux‐Nightingale, et al.
Pubblicazione: (2025)
Consensus on Culturally Competent Mental Health Services Recommendations: A Modified Delphi Consensus Study With Ethnic Minorities, Carers, Public Advisors and Health Professionals
di: Evgenia Stepanova, et al.
Pubblicazione: (2026)
di: Evgenia Stepanova, et al.
Pubblicazione: (2026)
Exploring Medicines Optimisation and Safety in the Community Following Mental Health Hospital Discharge: A Qualitative Interview Study
di: Mark Jeffries, et al.
Pubblicazione: (2025)
di: Mark Jeffries, et al.
Pubblicazione: (2025)
Documenti analoghi
-
Correction to “Creating Safer Cancer Care With Ethnic Minority Patients: A Qualitative Analysis of the Experiences of Cancer Service Staff”
Pubblicazione: (2025) -
Families' Strategies for Navigating Care for Their Child With Cerebral Palsy: A Qualitative Study
di: Silje Askeland, et al.
Pubblicazione: (2025) -
Social Determinants as Mediators of the Emotional State of People With Type 2 Diabetes and/or Hypertension During the COVID‐19 Pandemic in Ecuador and Spain
di: María José Sanchís‐Ramón, et al.
Pubblicazione: (2024) -
Announcements of Death During the COVID‐19 Pandemic: A Qualitative Study of Family Experiences
di: Axelle Avazeri, et al.
Pubblicazione: (2025) -
Parents' Experiences and Reported Outcomes of Family‐Centred Care: A Qualitative Systematic Review
di: Cansel Kocakabak, et al.
Pubblicazione: (2026)