Buchumschlag

Patient and Public Involvement Work With Parents of Children With Life‐Limiting Conditions and Bereaved Parents: A Rapid Systematic Review

Fuente: Wiley Open Access

Gespeichert in:

Bibliographische Detailangaben
Hauptverfasser:	Pru Holder, Bethan Page, Julia Hackett, Sarah Mitchell, Lorna K. Fraser
Format:	Artículo Open Access
Veröffentlicht:	Wiley 2024
Schlagworte:	Health Expectations
Online-Zugang:	Acceder al recurso
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Ähnliche Einträge

Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis
von: Bethan Page, et al.
Veröffentlicht: (2025)

Evaluating Process and Outcomes of Public Involvement in Applied Health and Social Care Research: A Rapid Systematic Review
von: Angela Wearn, et al.
Veröffentlicht: (2025)

Parents' Experiences and Reported Outcomes of Family‐Centred Care: A Qualitative Systematic Review
von: Cansel Kocakabak, et al.
Veröffentlicht: (2026)

Patient and Public Involvement (PPI) in Secondary Data Analysis: Protocol for a Targeted Review
von: Jonathan Broomfield, et al.
Veröffentlicht: (2025)

Public Contribution in Qualitative Research With Parents of Children Treated for Cancer: Description of and Reflections on a Collaborative Data Analysis Approach
von: Ella Thiblin, et al.
Veröffentlicht: (2026)

Identifying the Impacts, Obstacles and Information Barriers for Parents of Children Living With Genetic Neurodevelopmental Disorders: A Qualitative Study
von: Karen J. Low, et al.
Veröffentlicht: (2025)

The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research
von: Heather Mah, et al.
Veröffentlicht: (2025)

No Ethics Needed? Towards an Ethics of Care for Public and Patient Involvement and Engagement
von: Kanwal Mand, et al.
Veröffentlicht: (2026)

Children's Communication Choices About Musculoskeletal Pain and Injury: Insights From a Public Involvement Event
von: Rhiannon Joslin, et al.
Veröffentlicht: (2025)

Challenges and Facilitators to Patient and Public Involvement In Stroke Research: Protocol for a Qualitative Study
von: Hamidreza Khankeh, et al.
Veröffentlicht: (2025)

Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals
von: Alice Faux‐Nightingale, et al.
Veröffentlicht: (2025)

What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study
von: Caomhán McGlinchey, et al.
Veröffentlicht: (2025)

Talking the Walk (Along): Lessons Learned From Engaging With Children With Cerebral Palsy and Their Parents for Investigating Lived Experiences of Falls
von: Rebecca L. Walker, et al.
Veröffentlicht: (2025)

Frameworks to Evaluate the Quality of Public Involvement in Health and Social Care Research: A Scoping Review
von: Rose Hutton, et al.
Veröffentlicht: (2026)

Adolescent Involvement in Co‐Authoring Peer Reviewed Publications: A Reflection of Challenges and Best Practice Recommendations
von: Rebecca Raeside, et al.
Veröffentlicht: (2026)

The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research: A Modified Delphi Study
von: Pádraig Carroll, et al.
Veröffentlicht: (2024)

Patient and Public Involvement in Action: Shaping an Intergenerational Engagement Intervention in a Long‐Term Care Facility in China
von: Hao Liu, et al.
Veröffentlicht: (2025)

Public and Patient Involvement and Engagement in Clinical Trials: A Multi‐Perspective Mixed‐Methods Evaluation of the ROWTATE Programme
von: Blerina Kellezi, et al.
Veröffentlicht: (2026)

Researching Sensitive Topics: The Value of Inclusive Patient and Public Involvement and Engagement in the Design and Implementation of the Larger Bodies in Radiography Project
von: Hancock Amy, et al.
Veröffentlicht: (2026)

Patient and Public Involvement in Research Evaluating Integrated Care for People Experiencing Homelessness: Findings From the PHOENIx Community Pharmacy Pilot Randomised‐Controlled Trial
von: Andrew McPherson, et al.
Veröffentlicht: (2024)

Public and Patient Involvement in Artificial Intelligence and Big Data Healthcare Research: An Exploration of Issues and Challenges Within the AI‐Multiply Project
von: Alexandra Thompson, et al.
Veröffentlicht: (2025)

Exploring the Views of Children With Cerebral Palsy, Their Parents and Physiotherapists on Participating in a Feasibility Randomised Controlled Trial Testing an Exergaming Device: A Qualitative Study
von: Rachel Rapson, et al.
Veröffentlicht: (2025)

Stakeholder Involvement in the Development of a New Proactive Clinical Review of Patients Prescribed Opioid Medicines Long‐Term for Persistent Pain in Primary Care
von: Sarah A. Harrisson, et al.
Veröffentlicht: (2025)

The ‘Public’ in Public Involvement: A Call to Centre Frontline Staff Voices in Health Workforce Research
von: Yingxi Zhao, et al.
Veröffentlicht: (2026)

Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13
von: Ian Litchfield, et al.
Veröffentlicht: (2024)

Evaluating Patient and Public Involvement and Engagement Activity Within the 3DPiPPIn Trial: A Qualitative Exploration of Contributors' Perspectives on Their Impact
von: Ime Umoabasi, et al.
Veröffentlicht: (2026)

Consortium‐Based Patient and Public Involvement and Engagement for Long COVID Research: A Pirit‐Focused Impact Evaluation of the PHOSP‐COVID Study
von: Linzy Houchen‐Wolloff, et al.
Veröffentlicht: (2026)

Public Involvement in the Evaluation of Local Government Public Health Interventions in the UK: Lessons From PHIRST Insight
von: Georgina Kathryn Wort, et al.
Veröffentlicht: (2026)

Institutional Abuse, Neglect and Harm in UK Community Mental Health Services: A Scoping Review of the Peer‐Reviewed Evidence
von: Bethan M. Edwards, et al.
Veröffentlicht: (2025)

Evaluating the Study Designs and Outcome Measures Used in Service User Involvement in Health Professional Entry‐Level Education: A Systematic Review
von: Jonathan Green, et al.
Veröffentlicht: (2025)

How Do We Get the Public Into Public Health Research? Learnings and Key Recommendations From Initiating a Community Involvement Project Scheme
von: Carmel McGrath, et al.
Veröffentlicht: (2024)

Public Engagement in Health Policy‐Making for Older Adults: A Systematic Search and Scoping Review
von: Jeonghwa You, et al.
Veröffentlicht: (2024)

Erratum to “Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13”
Veröffentlicht: (2024)

Listening to Women's Voices: A Patient and Public Involvement Exercise Exploring Vulval Reconstructive Surgery for UK Women With Female Genital Mutilation (FGM)
von: Juliet Albert, et al.
Veröffentlicht: (2025)

Evaluation of Public Involvement in Doctoral Research Using a Four‐Dimensional Theoretical Framework
von: Piotr Teodorowski, et al.
Veröffentlicht: (2024)

Exploring Barriers and Facilitators to Patients and Members of the Public Contributing to Rapid Health Technology Assessments for NICE: A Qualitative Study
von: Eugenie Evelynne Johnson, et al.
Veröffentlicht: (2024)

Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned
von: Sharon Grieve, et al.
Veröffentlicht: (2025)

‘The Letter Says I May or May Not Be Eligible… It Is a Big Doubt and Frustrating:’ A Qualitative Study on Barriers and Facilitators to Children's Oral Healthcare From the Perspective of Karen Refugee Parents in Victoria
von: Sudheer Babu Balla, et al.
Veröffentlicht: (2024)

U.S. Vietnamese Parents' Perceptions of Different Approaches for Confirming Adolescent HPV Vaccination Records in Research Studies
von: Lilian Bui, et al.
Veröffentlicht: (2025)

Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires
von: Merel Engelaar, et al.
Veröffentlicht: (2025)