What Matters Most to Minoritized Families in Pediatric Dermatology Care: A Qualitative Study
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2025
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| author | Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn |
| author_facet | Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn |
| collection | Wiley Open Access |
| contents | What Matters Most to Minoritized Families in Pediatric Dermatology Care: A Qualitative Study Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn Pediatric Dermatology ABSTRACTBackgroundLimited access to pediatric dermatology care is a well‐recognized issue for racially and/or ethnically minoritized (Black, Hispanic, American Indian/Alaska Native [AI/AN]) communities. Little is known about their experiences utilizing dermatology care. Understanding the perspectives of affected families will aid healthcare systems in reducing disparities.ObjectiveTo identify racially and/or ethnically minoritized families' values regarding their children's dermatology care, opinions regarding racial concordance between the patient and healthcare clinicians, and perceptions of how pediatric dermatologists can improve their practice.MethodsEnglish‐ or Spanish‐speaking parents and/or guardians of children receiving care at a pediatric dermatology clinic identifying as Black, Hispanic, or AI/AN were interviewed from November 2, 2023, to January 23, 2024. Thematic analysis was conducted using a reflexive, team‐based inductive approach.ResultsThirty‐two parents were interviewed. Four major themes were identified: Being Heard, Patient‐Clinician Racial and/or Ethnic Concordance, Patient‐Clinician Gender Concordance, and Pediatric Patient‐Clinician Relationship. Being heard was the most important factor, defined as experiencing validation, empathy, patience, and respect for patient autonomy from their child's clinician. Racial and/or ethnic concordance between the patient and clinician was another commonly identified theme from interviews. Parents valued comparable minority backgrounds over racial and/or ethnic concordance with their child's clinician. Many parents expressed preferences for gender concordance, clinician familiarity with the patient, and specific clinician communication styles when engaging children.ConclusionsBlack, Hispanic, and AI/AN families shared that racial and/or ethnic concordance does matter, but being heard matters more. Assessing patient priorities through interpersonal skills training should be a core competency in dermatology residency education to enhance the care of our diverse and underserved patients and their families. 10.1111/pde.16021 http://onlinelibrary.wiley.com/termsAndConditions#vor |
| doi_str_mv | 10.1111/pde.16021 |
| format | Artículo Open Access |
| id | wiley_oa_10_1111_pde_16021 |
| institution | Wiley Open Access |
| license_str_mv | http://onlinelibrary.wiley.com/termsAndConditions#vor |
| publishDate | 2025 |
| publisher | Wiley |
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| spellingShingle | What Matters Most to Minoritized Families in Pediatric Dermatology Care: A Qualitative Study Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn Pediatric Dermatology What Matters Most to Minoritized Families in Pediatric Dermatology Care: A Qualitative Study Molly Thapar Elizabeth Garcia‐Creighton Sandra Garcia‐Hernandez Caroline Tietbohl Lucinda L. Kohn Pediatric Dermatology ABSTRACTBackgroundLimited access to pediatric dermatology care is a well‐recognized issue for racially and/or ethnically minoritized (Black, Hispanic, American Indian/Alaska Native [AI/AN]) communities. Little is known about their experiences utilizing dermatology care. Understanding the perspectives of affected families will aid healthcare systems in reducing disparities.ObjectiveTo identify racially and/or ethnically minoritized families' values regarding their children's dermatology care, opinions regarding racial concordance between the patient and healthcare clinicians, and perceptions of how pediatric dermatologists can improve their practice.MethodsEnglish‐ or Spanish‐speaking parents and/or guardians of children receiving care at a pediatric dermatology clinic identifying as Black, Hispanic, or AI/AN were interviewed from November 2, 2023, to January 23, 2024. Thematic analysis was conducted using a reflexive, team‐based inductive approach.ResultsThirty‐two parents were interviewed. Four major themes were identified: Being Heard, Patient‐Clinician Racial and/or Ethnic Concordance, Patient‐Clinician Gender Concordance, and Pediatric Patient‐Clinician Relationship. Being heard was the most important factor, defined as experiencing validation, empathy, patience, and respect for patient autonomy from their child's clinician. Racial and/or ethnic concordance between the patient and clinician was another commonly identified theme from interviews. Parents valued comparable minority backgrounds over racial and/or ethnic concordance with their child's clinician. Many parents expressed preferences for gender concordance, clinician familiarity with the patient, and specific clinician communication styles when engaging children.ConclusionsBlack, Hispanic, and AI/AN families shared that racial and/or ethnic concordance does matter, but being heard matters more. Assessing patient priorities through interpersonal skills training should be a core competency in dermatology residency education to enhance the care of our diverse and underserved patients and their families. 10.1111/pde.16021 http://onlinelibrary.wiley.com/termsAndConditions#vor |
| title | What Matters Most to Minoritized Families in Pediatric Dermatology Care: A Qualitative Study |
| topic | Pediatric Dermatology |
| url | https://onlinelibrary.wiley.com/doi/10.1111/pde.16021 |