Diagnostic aid for dementia in people with SPI(M)D

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Main Authors: Wissing, Maureen B.G., Hobbelen, Johannes, De Deyn, Peter Paul, Waninge, Aly, Dekker, Alain
Format: Recurso digital
Language:English
Published: Zenodo 2025
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author Wissing, Maureen B.G.
Hobbelen, Johannes
De Deyn, Peter Paul
Waninge, Aly
Dekker, Alain
author_facet Wissing, Maureen B.G.
Hobbelen, Johannes
De Deyn, Peter Paul
Waninge, Aly
Dekker, Alain
contents <p>This diagnostic aid has been developed to identify dementia-related changes in people with severe/profound intellectual (and multiple) disabilities - abbreviated as SPI(M)D - and it can be used in the diagnostic process. The results of the diagnostic aid only are not sufficient to make a diagnosis. Changes can also be caused by other conditions with dementia-like symptoms. These potential differential diagnoses must be ruled out.<br><br>The diagnostic aid consists of two parts. The first part asks general information about the interviewer, informant(s), and the person with SPI(M)D. The second part contains 42 items on dementia-related changes, categorized into seven symptom domains. For each item, it is asked whether a change has been observed in the last six months compared to the typical/characteristic functioning or behaviour. This refers to the functioning or behaviour that is typical of the person and that they have exhibited during adult life before deterioration occurred.<br>1. Changes in cognition<br>2. Changes in language and speech<br>3. Behavioural changes<br>4. Changes in eating and drinking<br>5. Changes in personal care<br>6. Changes in motor skills<br>7. Additional health problems<br><br>The collection protocol is described in detail in the accompanying manual. The manual must be followed carefully.</p>
format Recurso digital
id zenodo_https___doi_org_10_5281_zenodo_14832059
institution Zenodo
language eng
publishDate 2025
publisher Zenodo
record_format zenodo
spellingShingle Diagnostic aid for dementia in people with SPI(M)D
Wissing, Maureen B.G.
Hobbelen, Johannes
De Deyn, Peter Paul
Waninge, Aly
Dekker, Alain
Dementia
Intellectual disabilities
Severe/profound (and multiple) disabilities
Diagnostic aid
Down syndrome
<p>This diagnostic aid has been developed to identify dementia-related changes in people with severe/profound intellectual (and multiple) disabilities - abbreviated as SPI(M)D - and it can be used in the diagnostic process. The results of the diagnostic aid only are not sufficient to make a diagnosis. Changes can also be caused by other conditions with dementia-like symptoms. These potential differential diagnoses must be ruled out.<br><br>The diagnostic aid consists of two parts. The first part asks general information about the interviewer, informant(s), and the person with SPI(M)D. The second part contains 42 items on dementia-related changes, categorized into seven symptom domains. For each item, it is asked whether a change has been observed in the last six months compared to the typical/characteristic functioning or behaviour. This refers to the functioning or behaviour that is typical of the person and that they have exhibited during adult life before deterioration occurred.<br>1. Changes in cognition<br>2. Changes in language and speech<br>3. Behavioural changes<br>4. Changes in eating and drinking<br>5. Changes in personal care<br>6. Changes in motor skills<br>7. Additional health problems<br><br>The collection protocol is described in detail in the accompanying manual. The manual must be followed carefully.</p>
title Diagnostic aid for dementia in people with SPI(M)D
topic Dementia
Intellectual disabilities
Severe/profound (and multiple) disabilities
Diagnostic aid
Down syndrome
url https://doi.org/10.5281/zenodo.14832059